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New blog post from Nina E. Steinkopf. The National Competence Service for CFS/ME is known for their "biopsychosocial" approach to ME and is recommending treatment approaches as GET, CBT and Lightning Process. Nina E. Steinkopf initiated a petition against the Competence Service which received...

It started as a way to keep the trial RituxME funded and it was an annual allocation as long as the trial went on. When the trial ended, the post got removed but was re-instated last year due to pressure from patients. I don't know if it will be reinstated a second time as earmarked allocations...

New blog post about Lightning Process from Nina E. Steinkopf. She draws parallels to Lightning Process and debates concerning other alternative treatments as well as conversion therapy. One episode she writes about that I haven't heard about before, was from when Lightning Process coach Live...

Fluge/Mella and their ME research team at Haukeland University Hospital have for several years in a row received an earmarked allocation in the government budget. Last year the post was removed and re-entered after lots of protest. The post is missing this year as well and the deputy head of the...

By not distinguishing between ME from other types of fatigue. I'm astonished myself how long he's been able to carry this on for.. His methods are further discussed here...

I thought that was interesting too, but don't know any details from the planning of this conference. The contact person from NIPH is Centre Director Per Magnus. He's been keen for several years on doing a study on Lightning Process as ME treatment but has also kept a dialogue with the...

Yes it does, @andypants :-) Here's last year's program. For those who don't remember, the Lightning Process coach Live Landmark got invited as speaker, so the Norwegian ME Association had no choice but to withdraw as co organiser...

ME-patient and activist Sissel Sunde has written an informative blog post where she tells her own story and provides an overview of the ME debate in Norway. Among other things she tells about participating at the seminar of psychiatrist Bjarte Stubhaug, who claims he can treat 8 out of 10...

The Norwegian Institute of Public Health, the Norwegian ME Association and Oslo University Hospital are organising a research conference about CFS/ME in Oslo 25th-26th November. Program Dr. Joseph J. Breen, National Institute of Health, USA: NIH Intramural Study on ME/CFS Dr. Carmen...

I'd love to have that clip as a GIF :laugh:

Distressing Facebook post from MillionsMissing Finland ***** PLEASE SHARE ***** _ Finnish children with M.E. have increasingly started to be taken into care by the state against their own and parents will. _ Yesterday Iltalehti -newspaper reported on a 15-year old M.E. patient, Petteri, who...

Thanks again for your enormous work on this. I haven't been able to read everything yet, but looking forward to. In Norway the national guidelines for CFS/ME from the Directorate of Health is from 2014. So before the Cochrane review from 2015. The guidelines mention GET and refer to among...

Here is link to the filming of the conference starting tomorrow at 13.00 local time.

Stig Gerdes is appealing and taking his case to the High Court. The lawyer thinks it might take a year before it starts. The local newspaper Fredericia Dagblad has a short article about the appeal: Stig Gerdes reduced Karina Hansen's medicine without consulting her guardian, a treatment which...

#MEAction: Cochrane Analysis: What's Here, What's Missing, Conclusions by Jamie S To believe that increased exercise is an effective therapy worth testing in a clinical trial, researchers and clinicians must believe that patients’ symptoms are either incorrect, imagined, or immaterial. This de...

An interesting letter-to-the-editor in the newspaper Dagsavisen by a professor, an associate professor and a dean from Oslo Metropolitan University. The authors discuss who should make decision on research allocations and point to the fact that a lot of health research is basically useless...

The "press conference" was organised by Science Media Centre SMC: Lyme Disease in the UK Journalists came to the SMC to hear the scientists and clinicians discuss aspects such as: How do we estimate cases of Lyme disease and are current estimates likely to be too low? Are case of Lyme disease...

Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome CFS, also sometimes known as myalgic encephalomyelitis, is itself a controversial condition: some think it involves immune system problems, perhaps triggered by an infection, while others believe psychological factors may...