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  1. Kalliope

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    An Australian Exchange with Professor Sharpe Below is an exchange between members of the Australian ME/CFS community and Professor Michael Sharpe. The open letter from patients and advocates was prompted by a tweet this week from Professor Sharpe that many considered offensive. He has since...
  2. Kalliope

    Biomedicine & Pharmacotherapy: CFS: Suggestions for a nutritional treatment in the therapeutic approach - Geir Bjørklund et al - 2018

    Chronic fatigue syndrome (CFS): Suggestions for a nutritional treatment in the therapeutic approach Abstract Chronic fatigue syndrome (CFS) is known as a multi-systemic and complex illness, which induces fatigue and long-term disability in educational, occupational, social, or personal...
  3. Kalliope

    Concerns about Cochrane

    the BMJ Opinion Peter C Gøtzsche: Cochrane - no longer a Collaboration In my view, the Board and the CEO should resign. They should resign from their posts and call for independent elections to be held and respect the requests from 31 centre directors and many others for an independent...
  4. Kalliope

    Bateman Horne Center - November Education Meeting: Setting the Standard of Excellence

    This is a video from an event yesterday from Bateman Horne Center; November Education Meeting: Setting the Standard of Excellence First dr. Bateman talks about the history and development of their center. Then she introduces two brand new doctors at the center, Neilly Buckaloew MD and Brayden...
  5. Kalliope

    David Tuller: Trial By Error: Yet Another Letter About the Lightning Process Study

    Yet another letter about the Lightning Process study This morning I sent the following letter to Fiona Godlee, editor-in-chief of The BMJ and editorial director of BMJ. I cc-d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP.
  6. Kalliope

    Medscape: Ignoring Patient Input Tied to Diagnostic Error

    Medscape: Ignoring Patient Input Tied to Diagnostic Error Patients' views are not often included in records of diagnostic errors, but new data released on November 5 suggest that patient and family narratives may contain key information that should formally be included in the system.
  7. Kalliope

    Concerns about Cochrane

    Peter Gøtzsche has been suspended from Rigshospitalet (Denmark's main hospital) Rigshospitalet: Status of the situation at the Nordic Cochrane Centre ETA: It was via Rigshospitalet he worked as chief for the Nordic Cochrane Centre.
  8. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from initiator Nina E. Steinkopf where she summarises the reasons behind this petition and previous blogposts. Underskriftskampanje for å stanse feilbehandling av ME-pasienter har fått stor oppslutning google translation: Petition to stop malpractice of ME patients has received...
  9. Kalliope

    Cochrane ME/CFS GET review temporarily withdrawn

    Lillebeth Larun is from "Kunnskapssenteret", which only quite recently became a part of the Norwegian Institute of Public Health. It wasn't when the review got started (if I've understood this correct, that is).
  10. Kalliope

    Cochrane ME/CFS GET review temporarily withdrawn

    Article from a Norwegian news site about research, with comments from The Norwegian Institute of Public Health. Forskningno: Vil trekke tilbake ME-forskning etter kritikk google translation: Will withdraw ME research after criticism The article gives a bit background and mentions @dave30th 's...
  11. Kalliope

    News from Scandinavia

    I don't know who this is, but seems like a Swedish journalist is looking for experts/researchers on ME so thought I'd share the request here
  12. Kalliope

    Nature: The world's strongest MRI machines are pushing human imaging to new limits

    Nature: The world's strongest MRI machines are pushing human imaging to new limits Researchers look to scanners with 10.5-tesla magnets and beyond for unprecedented detail about the brain. ... Scans done with 7-T machines have also revealed more about the symptoms and progression of multiple...
  13. Kalliope

    The Triumph of Eminence-Based Medicine - Brian Hughes

    Thank you. Have also read it by now and as it includes a recap of the Guardian podcast I realised it was brand new. This was a great blog post. I can't tell how uplifting it is to see non patients following the ME debate and being able to see through the establishment and in to what's actually...
  14. Kalliope

    The Triumph of Eminence-Based Medicine - Brian Hughes

    Looks great and am looking forward to read it. Is this from today? (Can't find a date..)
  15. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from petition initiator Nina E. Steinkopf. This time about the support to ME patients from researchers and clinicians. She has collected several quotes, from amongst others @Jonathan Edwards Fagfolk som støtter ME-pasientene google translate: Professionals who supports ME...
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