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Coincides with their paper Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations (Peter Rowe team 2018) discussed in this thread. I was recently turned down for an assessment for POTS from my local hospital and am considering trying...

Scientific Fraud at London University Within UL itself, there is intense rivalry between the member colleges, the Medical Schools, the Schools and departments within those colleges, research groups and units within departments, and finally, between individual academics. The white heat of...

Now in Spanish!

Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...

ETA: I wanted to share a facebook post with this video from Carol Monaghan herself, but the text disappeared. Anyways, here is what she wrote: I have presented an application to the Backbench Business Committee for a full debate in the House of Commons on the diagnosis and treatment of ME...

New blog post from petition initiator Nina E. Steinkopf. This time she gives examples of how ME patients are talked about as a group by people with a psychosomatic/BPS approach to ME. It's quite disheartening.. She invites readers to leave comments with other examples from social media on how...

Should this be added to the calendar?

Ulrik F. Malt is a red flag. He has among other co-authored some articles about ME with Lillebeth Larun (the one with the Cochrane review which might or might not be pulled) and prof. Wyller (known for a strong BPS approach).

Trial By Error: Three Years On... Three years ago this month, Virology Blog published my 15,000-word investigation of the PACE trial, so this seems like a good time for a bit of reflection. I certainly didn’t expect this saga to drag on this long. I’ve kept at it mainly because of the UK...

It was a tweet by dr. Keith Geraghty which now seems to have been deleted.

Yes, it has been corrected now :) The point that's made now regarding the PACE trial is that this trial too has received criticism. But it says that the PACE trial is a trial on CBT as treatment for ME. They forgot the GET-bit.. Samtidigt påpekar han att liknande saker har inträffat förut och...

Not able to go through a lot of text now, so could someone please direct me towards the requirements for ME patients they're requiting? It is interesting that they'll accept patients from abroad. But only those who have been ill for less than five years? Are there other requirements?

MEAction: #MEAction protests Per Fink at Columbia University - Here's what happened Donny Moss, an able-bodied activist and ally, managed to enter the conference room where Fink was speaking to disrupt his talk by yelling, “Spreading this misinformation about people with ME is reckless. When...

@mango shared in the Scandinavia thread that the Swedish news site for medicine, Dagens Medicin, has a paywalled article about the Cochrane withdrawal. I had a look and here is a summarisation in English. Nothing new, and odd that he claims the PACE trial has also been withdrawn, but he makes...

You can subscribe for free for one month to the online version (I just did) This is an article about the Cochrane withdrawal with an interview of ME doctor Björn Bragée. He is not surprised that the review gets withdrawn. He says this patient cooperative is not like any patient cooperative...

Article from WAAY-TV HudsonAlpha Scientist Receives $45,000 Grant To Study Causes Of Chronic Fatigue Syndrome Worthey said her team will be partnering with a team at the University of Alabama at Birmingham. She plans to start genetic analysis of patients in a matter of weeks.