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  1. Kalliope

    NIH: New Grants Explore Benefits of Music on Health

    Wyller is of course already on this. I'm furious that research allocations have gone to this. This seems to be a combination of music therapy, CBT and gaslighting. Mental intervention for chronic fatigue syndrome (CFS/ME) following acute Epstein-Barr virus infection (2015) Music therapy has...
  2. Kalliope

    Per Fink awarded the "Civil Courage" prize, Sept 2019

    According to the article in the Danish Medical Journal (post #29) this is the second time Jydsk Medicinsk Selskab (a local medical association) in their 106 year long history gives the prize for Civil Courage. First time was in 2015 when the prize was given to professor Hans Jørn Kolmos as a...
  3. Kalliope

    Per Fink awarded the "Civil Courage" prize, Sept 2019

    Article from Danish Medical Journal. I think it's inconceivable of the journalist to repeat the attacks on ME patients without covering anything about the patient's side of the story. Ugeskriftet: Per Fink hædres for at stå fast, når fagligheten står for skud google translation: Per Fink is...
  4. Kalliope

    News from Scandinavia

    I stumbled upon the website CRISTIN - Current Research Information System In Norway. This is the list of the research projects that turns up when using the search word "CFS/ME". https://app.cristin.no/search.jsf?t=CFS/ME&type=project I've divided the projects into biomedical and...
  5. Kalliope

    A Life Hidden - Blog posts by Naomi Whittingham

    Thank you for writing, @Naomi10 I really admire your writing and am looking forward to read the rest of the article series. And thanks for adding the section summaries. I'm sure that made the text much more accessible for many. :)
  6. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    FOI request granted. They were just emails from someone complaining to the Norwegian Institute of Public Health for having been denied access to documents with case numbers 2017/10566 Documents nr. : 12 and 13. These documents have later been released and are included in @Michiel Tack 's blog...
  7. Kalliope

    A Life Hidden - Blog posts by Naomi Whittingham

    New blog post from Naomi Whittingham Beneath the Surface, Part 1 The first of a three part series analysing the British Association of CFS/ME (BACME) guidelines on severe ME. I have chosen to write extensively on this subject, as the guidelines encompass several themes that are important to...
  8. Kalliope

    Norway: Author and journalist Jørgen Jelstad

    Blog post from Sept. 18th 2019 ME-senter nr. 1: Virusjeger, immunekspert og sjarmen med tarmen google translation: ME center #1: Virus hunter, immune expert and the gut In this article Jelstad presents one of the research centres who where allocated with funds from NIH; The Center for Solutions...
  9. Kalliope

    Norway: Author and journalist Jørgen Jelstad

    Blog post from Sept. 13th 2019 300 millioner kroner til forskningssentre for ME google translation: 300 million NOK for ME research centres In this article Jelstad writes about the ME research centres funded by NIH. It is worth a small roar of joy, but the ceiling is not lifting yet. In...
  10. Kalliope

    Norway: Author and journalist Jørgen Jelstad

    Jørgen Jelstad is a physiotherapist, author, journalist and speaker who for several years was a strong voice in the Norwegian ME debate. In 2011 he published a book about ME, "De bortgjemte" (The hidden - and how ME/CFS became the most controversial disease of our time) which was an important...
  11. Kalliope

    Trial By Error: My Letter to Professor Chalder about the PRINCE Trial

    This morning I sent the following letter to Adrian Aldcroft, editor-in-chief of BMJ Open. The subject line was: "The factual error in the first paragraph of the PRINCE protocol" ***** Dear Mr Aldcroft-- Last week, I sent a letter to Professor Trudie Chalder on which I cc'd you and several...
  12. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thanks. I've sent a FOI-request for the documents. Doubt they will contain anything of interest, but just to be sure.
  13. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Bjarte Stubhaug is about mindfulness (and CBT) as ME treatment, co author Gerd Kvale has in addition developed a treatment program called The Bergen 4-Day Treatment - B4DT and this is the one who has inspired developing the center that's being build More about B4DT in English from Haukeland...
  14. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Yes, a brand new health center, Health in Hardanger (Helse i Hardanger) is now being build and will be finished next year. This will be an offer specifically for patients with chronic obstructive lung disease and other respiratory problems, people (particularly children and adolescents) with...
  15. Kalliope

    American Council on Science and Health: Chronic Fatigue Syndrome: Progress Towards Diagnosis And Treatment, Finally?

    Chronic Fatigue Syndrome: Progress Towards Diagnosis And Treatment, Finally? Article is written by Henry I. Miller, physician and Senior Fellow at the Pacific Research Institute. He has also been a Research Fellow at the National Institutes of Health and the founding director of the Office of...
  16. Kalliope

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    The Norwegian ME Association - Buskerud County - was present during the Symposium and got this interview with Ron Davis. No big news, but a nice summary of his work in layman's terms.
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