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Here is a trailer to the final information film made for this project. This one is about ME, school and friends. This is what's being said: Do you have a friend in your class with ME? In that case you might have noticed that something has changed in the friendship. Perhaps you are no longer...

Trial By Error: The CFS/ME Research Collaborative Conference So I attended the CFS/ME Research Collaborative conference two weeks ago in Bristol. The two-day event was a refreshingly PACE-free zone–as far as I could tell, I was the only person who mentioned that piece of crap in public...

4 000 have signed the petition by now!

Sometimes I use an ice package on the top of my head when I feel I have a "brain fever" and am so uncomfortable I despair. But if I use it excessively I feel the symptom just increases afterwards, but it does give some immediate relief.

@JaimeS did an excellent job tweeting from the Symposium, so while we are waiting for the videos to be uploaded to YouTube, going through her recent tweets will give some of the highlights of the lectures https://twitter.com/exceedhergrasp1/with_replies?lang=en #MECFS2018 was used as hashtag...

Yes. I think it can be an important part of self care to distance oneself from recommendations and treatment advice from other people who are not health care professionals. But the pressure is very high and turning down these advice might lead to patient blaming; well you obviously don't want to...

Thank you @edawg81 and welcome to the forum!

Ashley Haugen mentioned an email address for those who wants to submit a question. I can't find it on their website, but perhaps someone caught it and can share?

Linda Tannenbaum says 300 are attending and thousands are following through live stream.

I am so sorry to hear this and I've heard so many similar stories. It is heartbreaking. :cry: I am sure the parents intentions were the very best and I can't imagine how they must be feeling now. If it was Lightning Process your friend had, she and her family have no rights now neither as...

Good question! I thought there was relevant and useful info here. Nice to see Unrest mentioned as source of information. I'm sceptical on how they present correct management of ME as a road to recovery. It might lead to improvement, but it's not given, so might create expectations the patients...

Prof. Wyller as principal investigator with his BPS approach is usually a red flag. He is currently doing a trial on music therapy as treatment for CFS and wants to research Lightning Process as treatment as well. But he is highly respected within the establishment and has a lot of influence...

I was so happy when I learned you are coming to Oslo. Will try to be there. It will be cold and dark, but I hope how highly appreciated you are among ME patients in Norway and how very welcome you will be will compensate a bit :)

Larun is at the Norwegian Knowledge Centre for the Health Services, which quite recently became part of the Norwegian Institute of Public Health (it wasn't when the Cochrane review was written). Cochrane Norway is based at the Norwegian Centre for the Health Services - so there is a connection...

Agenda for today's symposium.

STAT NEWS: Cochrane ousted researcher over improper use of letterhead, board co-chair says A physician and researcher recently kicked out of one of the world’s most authoritative medical research bodies repeatedly misused official letterhead to espouse personal views, the co-chair of the...

Ugeskrift-journalist Bente Bundgaard with a good summary of the story thus far (at least until the lawyer's report was published) Hvad nu, Cochrane? google translation: What now, Cochrane? If Cochrane researchers are not specifically more independent than anyone else, if they are dealing with...

New article from Danish Ugeskriftet Går Peter Gøtzsche eller går han ikke? google translation: Is Peter Gøtzsche leaving or not? I've tried to fix some of the worst parts of the google translation: While the medical world is waiting for answers to these questions, Peter Gøtzsche has published...