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New blogpost from Nina E. Steinkopf, the initiator for this petition. In this blogpost she pulls apart the national competence service for CFS/ME's argument that they are manoeuvring through all research concerning ME. When looking at what seminars they are actually participating at and the...

I wouldn't even know where to start, and as she uses the opportunity to smear ME patients, no one would listen anyway. This nonsense needs to be met from a level up by doctors and researchers. But the national competence service for CFS/ME would probably just agree with the coach :bawling: Or...

Didn't Phil Parker just release a sales video about LP where he stated that ME is a physiological disease without a doubt (but obviously LP can still help). Shouldn't they agree amongst themselves what it is they are "treating"?

This is published in a news site about research. I thought those days were over when Live Landmark could distort the ME debate with her alternative facts and commercial activities, but no.

This is so dreadful I don't even know where to start in order to give a recap. :cry::cry::arghh: Lightning Process (LP) coach Live Landmark has written a letter to the editor defending LP as treatment for ME. Dette sier forskningen om Lightning Process og ME google translation: This is what...

A statement from today by Cochrane's Governing Board Cochrane is a collaboration: an organization founded on shared values and an ability to work effectively, considerately and collaboratively. The Governing Board’s decision was based on an ongoing, consistent pattern of disruptive and...

Another blog post from initiator Nina E. Steinkopf. She writes about the harm the competence service causes patients when they include research and diagnostic criteria beyond ME. Kompetansetjenesten skader ME-pasienter google translation: The Competence Service is harming ME patients 3598...

Letter to the editor from ME-patient and graduate engineer Benedikte Monrad-Krohn about Cochrane, ME and CBT/GET. She discusses and explains several weaknesses with the Cochrane review on ME and GET. This is on a Norwegian news site about medicine. Benedikte Monrad-Krohn: Besværlig...

This statement says absolutely nothing. They're just throwing him under the bus without revealing any details of the complaints they got about him. This Board decision is not about freedom of speech. It is not about scientific debate. It is not about tolerance of dissent. It is not about...

New blog post from initiator Nina E. Steinkopf. This time about the importance of strict diagnostic criteria. Ikke min sykdom! google translation: Not my illness! The competence service has the defining power and chooses to mix ME with mental disorders. Therefore, it must be legitimate to ask...

This is so interesting. I'd like to be tested for this before and after having read some long texts, as that's when I feel the brain is burning. The only thing that helps is to not read, not write, not concentrate. I don't usually get this particular symptom after physical exertion, but it can...

The problem is we don’t have feedback systems in place that will actually let doctors know they made an error. So they assume they’ve gotten the diagnosis right unless they hear otherwise—and they usually don’t unless the patient themselves comes back to tell them they were wrong. In other...

Expert Q&A: When Medical Symptoms Are Dismissed as "All in Your Head" The book reviews how ME/CFS (myalgic encephalopathy/chronic fatigue syndrome), fibromyalgia, many autoimmune diseases like multiple sclerosis, and other chronic illnesses are all part of the group you refer to as “the...

Trial By Error: The Open Letter to Netflix about Afflicted Blog post contains a short intro and the letter itself. David Tuller has added his name to the list of signatories.

Here is a trailer for the second film made for this project. The theme is how you can develop an educational plan. It is in Norwegian, but here's what's being said: After I got diagnosed with ME, everything seemed hopeless. My parents were frustrated over the situation at school, and the...

Oh, he does say "chronic fatigue" not "chronic fatigue syndrome", and towards the end he talks about exercise.. :(

Concept: Anil van der Zee Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen Video, audio and editing: Willem Timmers