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  1. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    You were right, @Sasha I had forgotten to add it when I started the thread. That's also very plausible. :confused: Good thing you spotted it!
  2. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Well, twice is better than none. :laugh:
  3. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    I was sure I had added it. Added it once again and now it comes up double. You still can't see it?
  4. Kalliope

    News from Scandinavia

    I'm sorry. I used this page https://www.dinordbok.no/norsk-engelsk/?q=kompetansesenter But there might be a difference between "kompetansesenter" and "kompetansetjeneste"? Thanks for the correction. :thumbsup:
  5. Kalliope

    Concerns about Cochrane

    Yes, I think that's safe to say!
  6. Kalliope

    Concerns about Cochrane

    I'm confused about the proceedings, but Swedish Läkartidningen and Danish Dagens Medicin both write that he will continue. Here is a google translation of the article in Dagens Medicin: Peter Gøtzsche continues as head of the Nordic Cochrane Center
  7. Kalliope

    Netflix "Afflicted" - ME included

    Opinion piece in the Guardian based on Rehmeyer's article: Frances Ryan - Sorry, Netflix: we don't need another freak show When groups are stereotyped on TV, it does not just reflect the prejudices of the time but can be key in perpetuating them. Distorted depictions can be particularly...
  8. Kalliope

    Netflix "Afflicted" - ME included

    This was excellent! For those who can't access it, here is how it starts off: Ableism kills. I’ve watched my fellow patients with myalgic encephalomyelitis, also known as chronic fatigue syndrome, suffer and even die from the ignominy of a suspect disease. Patients often can’t get effective...
  9. Kalliope

    Upcoming book: CLASSIC PACING - For a better life with ME

    I couldn't see that mentioned specifically in the table of contents,
  10. Kalliope

    Upcoming book: CLASSIC PACING - For a better life with ME

    This is a self help book on pacing that has been doing very well in Norway and has just been printed in its 2. edition. From next month it will be available also in English! The author is Ingebjørg Midsem Dahl who suffers from ME herself. Website with presentation of book Blurb from dr...
  11. Kalliope

    Concerns about Cochrane

    It seems Gøtzsche is still leader for the Nordic Cochrane Center. Ugeskriftet: Magtkampen i Cochrane afgjort - for nu Google translate The power battle in Cochrane is over - for now
  12. Kalliope

    David Tuller: Trial By Error: Bruce Levin on "How Not to Conduct a Randomized Clinical Trial"

    Bruce Levin on "How Not to Conduct a Randomized Clinical Trial" last week Professor Levin took his criticism a step further with a public talk about PACE at Columbia. The talk was called, appropriately enough, “How Not to Conduct a Randomized Clinical Trial.” For the last couple of years, I...
  13. Kalliope

    News from Scandinavia

    Here is a "trailer" from one of the animations that have been made for this project. It is in Norwegian, but here is a translation of what is being said. This looks like a normal class room situation. But for this pupil, the experience is completely different. You see, ME patients have a...
  14. Kalliope

    Concerns about Cochrane

    Medscape: Cochrane Collaboration Expels Dr Peter Gøtzsche Article has a bit background info on the HPV vaccine debate.
  15. Kalliope

    David Tuller: Trial By Error: So What's Happening with the MAGENTA Trial?

    Yes. Seems to be several problems unravelling there.. There is a discussion on this thread, for those who wants to have a look https://www.s4me.info/threads/epigram-senior-bristol-researcher-resigns-after-admitting-to-research-misconduct.5700/
  16. Kalliope

    Concerns about Cochrane

    New story from Ugeskriftet and from same journalist. She is reporting from Edinburgh. Not a lot of new things than what has already been shared in the thread, so will just add links to the article. But do let me know if something in the google translation needs clarification and I'll try to...
  17. Kalliope

    David Tuller: Trial By Error: So What's Happening with the MAGENTA Trial?

    So what's happening with the MAGENTA trial? I’ll be in Bristol later this week for the CFS/ME Research Collaborative’s annual conference. I was not welcome last year, since I was at that point engaged in harshly criticizing the organization for its unwillingness to acknowledge that its deputy...
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