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  1. Kalliope

    Unexplained exertional intolerance associated with impaired systemic oxygen extraction - 2019, by Melamed, Systrom et al

    Seems all patients included had ME/CFS? I didn't catch that from the abstract.
  2. Kalliope

    Unexplained exertional intolerance associated with impaired systemic oxygen extraction - 2019, by Melamed, Systrom et al

    European Journal of Applied Physiology: Unexplained exertional intolerance associated with impaired systemic oxygen extraction by Kathryn H. Melamed, Mário Santos, Rudolf K. F. Oliveira, Mariana Faria Urbina, Donna Felsenstein, Alexander R. Opotowsky, Aaron B. Waxman, David M. Systrom Abstract...
  3. Kalliope

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    I think it is supposed to be published within 2019, but can't remember where I saw that .. Hopefully we'll learn more about the status of the study today :-)
  4. Kalliope

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Another letter to Fiona Godlee, this time from Alan Gurwitt: Here's the most recent message sent to Dr Fiona Godlee about the transparently face-saving "correction" on the Lightning Process study. This message is from retired Yale psychiatrist Alan Gurwitt. Dr Gurwitt also cc'd the 25+ other...
  5. Kalliope

    Sweden: Seminars for doctors about ME and chronic fatigue Sept 12th and Oct 2nd

    The journal of the Swedish medical association will be hosting two seminars about chronic fatigue and ME Uttmattningssyndrom och ME/CFS - Umeå 12. sept Uttmattningssyndrom och ME/CFS - Malmö 2. okt Description of the seminar: Over 700 visitors in Stockholm and Göteborg After the well...
  6. Kalliope

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Trial By Error: Calls for Retraction of the LP Study Last week, when I sent Dr Fiona Godlee an open letter about the untenable decision by Archives of Disease in Childhood to republish the originally reported findings from the Lighnting Process trial, I cc’d many of the 55 signatories. Now...
  7. Kalliope

    New Yorker: A Town for People with Chronic Fatigue Syndrome

    I've only heard bits and pieces of the story about Ampligen. Nice to read such an account in one article.
  8. Kalliope

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    David Tuller: Trial By Error: Lead Author of Cochrane's New Bias Guideline is LP Study Co-Author Why did Professor Sterne sign off on the Lightning Process trial paper, in which critical information about retrospective registration and outcome-swapping were withheld from the public version of...
  9. Kalliope

    News from Germany

    I'm so sorry to hear this. :( How are patients and carers organised in Germany?
  10. Kalliope

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Excellent! And what an impressive list of 55 signatures!
  11. Kalliope

    Reproducibility of Measurements Obtained During Cardiopulmonary Testing in Individuals With Fatiguing Health Conditions - Larson, Snell, Davenport ..

    Cardiopulmonary Physical Therapy Journal Reproducibility of Measurements Obtained During Cardiopulmonary Exercise Testing in Individuals With Fatiguing Health Conditions - Benjamin Larson, Todd Davenport, Staci Stevens, Jared Stevens, Mark Van Ness, Christopher Snell Purpose: Measurements...
  12. Kalliope

    The New York Times: Why Doctors Still Offer Treatments That May Not Help

    The New York Times: Why Doctors Still Offer Treatments That May Not Help by Austin Frakt Even when we learn something doesn’t make us better, it’s hard to get the system to stop doing it. It takes years or even decades to reverse medical convention. Some practitioners cling to weak evidence of...
  13. Kalliope

    Acta Neurologica Scandinavia: Inflammation and fatigue in early, untreated Parkinson's Disease - by Herlofson et al - 2019

    I recognise one of the authors, prof. and neurologist Ole-Bjørn Tysnes from the CFS/ME literature. He has co authored the article Investigation of suspected chronic fatigue syndrome/myalgic encephalopathy which showed that many patients referred to the neurological department at Haukeland...
  14. Kalliope

    Acta Neurologica Scandinavia: Inflammation and fatigue in early, untreated Parkinson's Disease - by Herlofson et al - 2019

    Article about the study in ScienceDaily from August 9th. Biomarkers link fatigue in cancer, Parkinson's The researchers hope the discovery will allow health care providers to target specific treatments that can lower the levels of the inflammatory biomarkers and in turn improve the quality of...
  15. Kalliope

    Acta Neurologica Scandinavia: Inflammation and fatigue in early, untreated Parkinson's Disease - by Herlofson et al - 2019

    Inflammation and fatigue in early, untreated Parkinson's Disease Abstract Objectives Parkinson's disease (PD)‐related fatigue is a significant clinical problem, and the pathological processes that cause fatigue remain unknown. The aim of the present study was to explore the possible association...
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