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Such great news, hooray!! :balloons: :cookie: :cake: (£69 over the goal at the moment, maybe there will even be some more by the end of the day.)

I truly fail to understand what the point of the Spectator article is, or why anyone would publish it. What is it supposed to accomplish? On what planet, certainly not here in Britain, would a 'well-known malingerer' be 'receiving his tenth unnecessary CT scan'? Even getting one scan is...

Wow, I didn't know all that about him either. Now there's someone who has experienced real threats and abuse, which makes the BPS crowd's whiny claims of threats and abuse from very ill, incapacitated patients look even sillier than they already do. GM is indeed an impressive guy.

Oh absolutely. I brought up the letter as a historical illustration of how a disabling multi-system physiological illness got turned into 'idiopathic fatigue'. However, Strauss is gone but the idea that ME/CFS = merely fatigue still prevails. I indeed hope things move forward but it rankles...

I just found a copy of the full letter! https://d3n8a8pro7vhmx.cloudfront.net/meadvocacy/pages/167/attachments/original/1585814547/Strauss-Fukuda_Letter.pdf?1585814547 Further to the excerpt in the tweet I posted on the previous page, this is also telling: Wow. And again, it's 'my own sense' -...

Ah, thanks for the correction!

They say that, but the thing is, though, the science doesn't justify fatigue either. Yet the medical community chose to fixate on just that one vague symptom. The original Ramsay definition didn't even include fatigue, except for a specific and unique type of muscle fatiguability, not the same...

I've seen people suggest 'Ramsay's Disease' and that could be good because it doesn't specify a particular symptom that might not be provable (such as brain & spinal cord inflammation a la ME), but apparently diseases aren't named after people anymore for some reason. Just something that isn't...

As someone who got Ramsay-definition ME in 1983 when it was still considered a physical disease, and NOT about tiredness (it was described as 'flu-like', not 'fatigue'), the psychs had not yet barged in and taken over, and 'CFS' had not yet been invented, I can confirm that that's exactly what...

Yes! It was March 2019. I was one of the ones who responded to George's question! So glad he took up the cause, he seems a really good guy.

LOL, if only! (But we have to feel sorry for the ME or LC sufferers in whatever country he lands up in.)

Wowza. To think only two years ago, The Times hosted that silly public pity party about Sharpe being forced out of research because a couple of people said mean things about him on Twitter, and now this.

This is so patronising and awful. Poor cancer survivors, as if they don't already have enough awfulness to deal with. Exactly this. Starting with ME/CFS and now, it seems, moving on to just about every other illness under the sun. I guess Chalder & co finally twigged that their heyday of...

Oh my, that's hilarious! If they could get something like that so howlingly wrong, no wonder the rest of the paper is such nonsense. I mean, really? :rofl:

The thing that gets me about this particular group of professionals claiming 'harassment' and what they perceive as 'death threats', is that they're psychiatrists (except Crawley of course, but she obviously buys into a psychiatric approach to ME/CFS). Badly-behaved patients, threats and...

Aha, good job on finding a still-online copy of the video!

She did indeed say she received it! Certainly in her TEDx talk in December 2017, which was briefly on YouTube but was set to Private (still is) after numerous critical comments, but I happened to have downloaded it from YouTube while it was accessible, and still have the copy. At 9:23 minutes...

Yes! I had a conversation a few years ago on a now-defunct forum in which a group of members who made it clear that they hated people with ME, were discussing about how horrible those militant ME sufferers were for sending Wessely death threats. I asked them to provide documented evidence of...

This is such a heartsink situation. I really hope it isn't the start of a cycle of continual delays for a few more months, then a few more months, and so on, for 'reasons'. Meanwhile, the harmful guidelines still stay put. It did seem to be too good to be true that the new guidelines were such...

So I guess that's when they become what Wessely called 'groups'. :rolleyes: