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Ugh, where's a finger-down-the-throat emoji when you need one? A non-scientist media person awarded an honorary science degree for being in with the in-crowd in a little echo chamber where everyone gives each other continual awards and accolades, while not giving a damn about science...

Am unable to access the Huffington Post article, if anyone else has a similar problem this is from UK's ITV News https://www.itv.com/news/2019-09-16/hundreds-of-patients-suffer-due-to-nhs-errors/ Yikes. Am scared to ever let anyone from the NHS near me again, especially with a scalpel. Who...

Judging by his various public pity parties in the media the last few months about horrible 'activists' being mean to him and his work, it looks like there may well not be any depth to which he is unwilling to sink!

LOL! I LOVE that retort! :rofl:

Wow, they lump ME/CFS in with SAD, for some unfathomable reason. Yes, if only ME really was just 'feeling tired and run down most of the time', 'which can be debilitating' (my bold), which implies it might not be debilitating. As well as not being able to grammatise or punctuate properly, they...

White and his colleagues really come across as textbook examples of Dunning-Kruger. (ETA: https://en.wikipedia.org/wiki/Dunning%E2%80%93Kruger_effect )

Just took the survey - boy, was it bizarre. Consisted only of a series of questionnaires entirely focused on abnormal psychology issues (eg, constant uncontrollable worrying) and nothing relevant to ME/CFS. Very hard to understand what the point of the survey is or how the results would be of...

Don't know if everyone here is aware that Parker was reported to the Advertising Standards Agency in 2012, and their conclusion was: https://www.asa.org.uk/advice-online/health-the-lightning-process.html https://www.asa.org.uk/rulings/Phil-Parker-Group-Ltd-A11-158035.html Parker said in his...

Re the Breakspear Clinic post above, I'll just stick my head above the parapet to say that I'm a patient there and mention my own experiences. I knew the clinic was considered 'woo'-y by skeptics, but I was getting nowhere with the NHS in trying to get diagnosis/treatment for probable Lyme...

Yes, I came across that article yesterday and was enthralled by it, thank you for posting it - a truly amazing story indeed. Lots of stuff we can relate to: he fell ill, got progressively worse/weaker with time, had to give up college, became bedridden, got a fair amount of medical...

I do most of my shopping on Amazon and eBay due to being mostly housebound, and have been donating to Invest In ME Research via Amazon's Smile scheme for the past couple of years. It's not much but every little bit helps. :)

Wow, that's an amazing achievement - well done!

Yes, he's stated it to be 'at the heart of medicine' in various sources, such as here https://www.kingshealthpartners.org/latest/855-new-royal-society-of-medicine-president and here https://www.newscientist.com/article/mg22329850-400-we-need-shrinks-in-hospital-emergency-rooms/ . (ETA: I would...

(My bold.) Funny that. Last year on Twitter he was proclaiming that ME and CFS are two different conditions and that PACE only studied CFS and wasn't about ME. Previously, he had always stated that they are alternate names for one condition. When a few Twitterers supplied him with documentary...

That's the impression I had of him too. Am truly shocked and saddened. Hopefully there will be more of an explanation soon.

Vogt hasn't blocked me (yet), I've never posted to him, but I noticed I had been blocked at some point by CFS_research who he is telling people to follow. CFS_research is one of those super-precious snowflakes who block people just for Liking/Retweeting a post on the topic of ME that he doesn't...

Hee hee, I was just about to post that link but you beat me to it! Hall really doesn't seem to have thought PACE was great at all.

On my PC it plays with no sound at first, but if you mouse over the icon of a speaker with an x next to it and click the x, the sound will then work. It just starts off with the sound disabled for some reason. ETA: Cross-posted with Sasha!

He is not the inventor of CBT but was a junior psychiatrist in the late 1980s who invented an 'unhelpful illness beliefs' theory of ME/CFS as mentioned above by strategist, and decided that CBT would remove those unhelpful beliefs and thus effect a cure. His benefits were fame (he's very...

So did I, back when a group of us here ordered that promotional offer last winter (January 2018). There was no need for it to be ordered from a physician, and as far as I knew from over the years when a couple of friends had mentioned uBiome to me as maybe something I would like to check out...