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This, a million times. Thank you for expressing it so well in such a moving interview, @JohnTheJack .

Hey thanks, will look into that!

OMG, that first Google result, Trustpilot: 8% 'Excellent', 88% 'Bad', aaiiieeee. I'm too poor to get a high value card, so no worries there - all I wanted was a card with a few bucks just for the donation to Berkeley. OK am giving up on this for now, my brain hurts, LOL.

My card is a debit card, I don't use a credit card. Might vary with what country you're in or what bank you're with, but my bank account got overdrawn by over a hundred pounds when my debit card got defrauded, not just what was in the account. And I got charged for going overdrawn, although...

I buy frequently on Amazon and that's a different scenario - you don't give your card details out online every time you make a purchase, you give them once when you create your account with them and they store it for future transactions. The only exception is when your card expires and then you...

Thanks for that! Will see if our local Sainsburys does them. And am so sorry to hear you had to deal with fraudulent card transactions too, it is a total PITA. (In my case it was hundreds of pounds and left me overdrawn, so not going to risk putting myself in that position again!)

I will no longer use cards to pay for anything online after my card got defrauded 3 times within 5 years a few years ago as a result of online card transactions, despite keeping my computer locked down with tons of anti-malware and security stuff and being very careful. I won't ask someone else...

Thank you so much for giving us another year of your wonderful investigative work. Again, I wish Berkeley would take PayPal, as it's the only way I can donate. They could really bring in a lot more from those in the same situation if they can add that option. Pretty please, Berkeley? With...

I suspect that will only happen when pigs learn to fly, hee hee. :D

Seeing this makes me so angry. The exact same thing happened to my husband's mother. She was told for over 3 years that her symptoms were just IBS, it was 'just her age', and to 'go away and stop wasting doctors' time'. By the time someone finally got off their backside and examined her...

I took a look at that link but couldn't find it, not in the thumbnails at the bottom nor even by doing a search. Strange, could it have been removed (she asked hopefully)?

Yes, I was surprised he called himself that in the letter Robert posted above; when I saw him his title was Consultant Physician and Endocrinologist, he specialised in endocrinology and diabetes, and the only tenuous connection with ME was that he ran the local 'fatigue clinic'. Am very...

Yes, I think you're absolutely right about that! Ugh.

Arrghh, I'm unable to like that post because that Dr Colin Johnstone who wrote the first letter is the doctor I saw who told me my devastating bring-you-to-your-knees symptoms could just be me mistaking normal everyday bodily functions for symptoms, as I recounted in my post no. 19 here...

Absolutely right. Having lived in those two countries for many years each, I can say that my takeaway has been that in the US, when those in charge find they've been doing something wrong, they like to take action to fix it and do better, which both puts themselves in a good light and helps...

This, exactly. I worked in a psychiatric unit for several years and the staff were routinely subjected to bad behaviour and sometimes quite scarily threatening behaviour. Someone being mean to someone on the internet doesn't come even close. I suspect that Sharpe, Wessely et al have only...

Yes, this. Thank goodness they are finding it hard to recruit new researchers - and yes, funny how Kelland didn't know about, or chose not to acknowledge, the ever-increasing number of biomedical scientists that have been coming into ME research (at least in the States). Looks like it becomes...

Yes, that's the case - I was on what was called Incapacity Benefit when I got ill, the name of which was later changed to ESA. I wasn't considered eligible for PIP, despite being housebound and for some time bedridden. But, full NI contributions did get credited from out of my Incapacity...

LOL! Didn't quite feel up to being rude enough to tell him that, but it is indeed how I'll always remember him! :emoji_potato: (Well, there's no emoji for poop, that potato will have to do!)

Similar here: An endocrinology consultant who was actually recommended to me as a 'CFS expert' told me that my horrifically disabling, bring-you-to-your-knees symptoms could be just me mistaking everyday bodily functions for symptoms. When he said that, I was so shocked and lost for words that...