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This is a phrase I used to hear when I first had ME in the 1980s. Has anyone else here come across it? I can't remember the original source, but it was bandied about quite a bit back then. It was thought that something about the immune system being made dysfunctional by ME somehow made sufferers...

I see that the BBC have now changed the title of the article to "Miranda on 'joy and fun' of getting married at 51". ??

After my 1983 respiratory flu, which everyone I knew had and we were really floored for a couple of weeks because it was so severe, we all recovered and went back to work. All seemed fine for about 3 weeks, then suddenly I started feeling weird, getting odd symptoms and sensations I couldn't...

That's so interesting to see it from your mother's viewpoint, thank you. I was lucky to get a few understanding doctors, and yes, they did think it was the same thing as Royal Free Disease, and indeed I got referred to the Royal Free Hospital. I did see a few doctors at first who were very...

When I got and stayed severely ill for 5 years after a severe respiratory virus in February 1983, things were very different, indeed out of all recognition, from now. It was called ME among doctors who knew about the phenomenon of staying ill after a virus with the set of symptoms I had, which...

Yes, similarly I simply tell strangers I have a 'chronic disabling post-viral syndrome' that limits my strength. I would like to say ME but because of the stigma now attached to what was once a respectable name before the psychs pooped all over it, I don't use it with strangers. And I will NEVER...

I've heard of people getting ME after an anti-virus vaccine, which may make sense as vaccines can sometimes give people the symptoms of the virus they've been inoculated against? (And, in the 1950s, some patients got polio from a rogue batch of polio vaccine in which the virus had not been...

Same here, I was diagnosed with post-viral syndrome in 1983, before the 'fatigue' bit was added a few years later to change it to 'post-viral fatigue syndrome', which started us on the slippery slope to making the disease all about 'fatigue'. But various doctors I saw back then did call it ME as...

Yes, exactly my experience too. Was seen by an Infectious Diseases consultant who I really thought was going to be able to get to the bottom of whatever I was infected with and treat it, and they seemed interested/keen at first, only to cut me loose as soon as my routine blood test came back...

Same here. I tried acupuncture years ago out of desperation when a couple of friends enthused about it being great for all their ailments. I found it hideously painful, plus it exacerbated all my symptoms.

Wessely has never written anything but drivel, whether with 'meaning' or not! He likes trying to make himself sound clever and authoritative, but it all boils down to being a load of lovingly steamed & seasoned TRIPE.

I found it ironic that the same year Dr Myhill was suspended for a year for prescribing a B12 injection, NHS doctor Dr Jane Barton was let off for causing 12 patients under her care to die. https://www.theguardian.com/society/2010/jan/29/jane-barton-doctor . Her brother was in the GMC and knew...

This article, and others that came out at the same time, disgusts me as a many-years patient of Dr Monro. The BS about her treatment not being rooted in scientific or clinical fact is pretty laughable considering, as @Hutan said, how typical that is of NHS BPS-pushers, and indeed many doctors in...

Oh my gosh I'm so sorry, @lunarainbows , what a horrendous and heartbreaking experience. Many many hugs :hug: :hug: :hug:

Yes. Statements about ME being a mainly female illness are very worrying, as this risks ME being seen as a 'women's problem' and therefore not to be taken seriously. The immediate thing that struck me, as mentioned by a few other posters, is that it may simply be that women may more actively...

@Trish , Omigosh, Greenhalgh's responses were utterly bizarre and inappropriate. Hard to understand why she would consider your perfectly reasoned posts 'trolling'. Judging from her mass blocking of everyone with ME in their bio on Twitter, this further reinforces that she appears to have some...

It is amazing how one 'easy PhD' had so much power. Can only guess it tied in nicely into a medical establishment/government/health insurance provider agenda for trivialising inconvenient diseases?

McEvedy was a junior doctor who wrote his Royal Free outbreak paper as his PhD thesis, without ever having examined a patient, and Beard was his senior. His obituary here gives a rather glowing summary of that topic: https://www.bmj.com/content/bmj/331/7520/Obituaries.full.pdf . A book by Dr...

Ohhhh I thought you were quoting from the NHS page, that that was what THEY said!! Sorry. It just does sound like the sort of (patronizing) thing they would say, without actually meaning it, of course.

Ugh. Again, so patronising. :sick: