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  1. MrMagoo

    'Three best' questions to ask GP if they ignore you

    Yes I have met this attitude. I don’t have a consultant treating me, just speak to the GP therefore it’s not serious as there is no hospital involvement.
  2. MrMagoo

    'Three best' questions to ask GP if they ignore you

    If only there was a campaign to help doctors be less dismissive
  3. MrMagoo

    United Kingdom: ME Association news

    I was invited to join the ME Association “ME Connected” today via insta stories. I clicked the link (for research purposes of course) it took me to the Discord site but then it couldn’t complete the task as the address was invalid. So that’s working well.
  4. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yes the plan was to gather information which could be used as a large dataset on ME - something NICE 206 identified as a gap. Sounds good, right? Sounds like the sort of thing the ME association should fund. Except - the way this dataset would be generated was by the project group of Sarah...
  5. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    A good day to bury news… Hopefully they will be obsolete by the time they’re finished. I can dream!
  6. MrMagoo

    Preprint A Signal for Voice and Speech Abnormalities in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, Grach et al

    Funnily enough, as I have been doing exercises and silent rest over the past 8 months or so, I realised at one point that I was having more and better conversations (strength of voice-wise) however with this came the old problems I’d forgotten about - slurred words, word-finding difficulties etc...
  7. MrMagoo

    Preprint A Signal for Voice and Speech Abnormalities in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, Grach et al

    Gutted, I suffer a lot with voice issues and I’d have loved a decent piece of research. I really think it’s an overlooked symptom. When I was mild I-started to lose my voice if I got a bug. Except I didn’t get a bug, it was a little crash. It progressed until I lost my voice for over a month...
  8. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I do actually wonder why they have gone about this like a bunch of idiots. They could have spun it differently and minimised the fallout, instead of sniggering and calling PIP pocket money etc. I don’t love reforms but there’s some reasonable stuff as well as the massive cash grab.
  9. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I can’t believe Big Pharma isn’t trying to get her shut down!
  10. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Thinking about it more, what conditions do exist which manifest “real symptoms” because you think you’re ill? Munchausens/Facetious disorder is not counted as that’s manipulation rather than true belief you have the illness you’re play acting. Health Anxiety can cause issues maybe? Any...
  11. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I feel like we need a “zinger” of a phrase, if there was a catchy, snappy, undermining retort it would go viral and shut down this kind of thing quickly and easily. I can’t think of one. I’d probably go with “not this magical thinking solution again!” Or “I’m not “manifesting” these symptoms...
  12. MrMagoo

    Two part article on cognitive therapies, mindfulness, Garner etc., 2025, Long Covid Advocacy Substack article

    I will never forgive mindfulness for robbing me of raisins. With some barely-overcome disordered eating and ARFID issues I started to enjoy them as an adult. Then, when the NHS CBT and Psychotherapy failed to cure my ME I was directed to a practitioner who asked me to buy a book on mindfulness...
  13. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I hated my workplace but miss working. I dream I’ve interviewed for a job then I have to go to work and I remember I can’t when I get there on my first day, and they say I seem fine so I struggle through knowing I’ll call in sick and quit the next day.
  14. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, I’m interested to know generally how many pip claimants in % terms get which score. I think I’ll have to email benefits and work or someone as I don’t have the energy to do the FOI but I’m really interested. On the one hand is the narrative of “scroungers” raking it in getting benefits for...
  15. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    It’s the “secret” unknown workings of PIP isn’t it? I know, I’ve “felt” it, that there is some language or something missing from what I’m saying which is keeping me low on points - despite genning up on the rules and putting my case across perfectly well and 8n line with their guidance. I’m...
  16. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Whilst we are on the subject of PIP points, it would be interesting to see a full breakdown of how many get each point category. Does anyone get 8 for anything? How many people in EWNI are paraplegic and are they all claiming PIP?
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