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  1. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Hmm giving benefits stops you working or getting better. That sounds….familiar. I did not have “Labour internalises BSP and rolls it out as policy, across all disability benefits” on my 2025 bingo card, but here we are.
  2. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, it’s as if we aren’t actually able to work, isn’t it?
  3. MrMagoo

    Mental activity causing physical PEM, specific symptom patterns?

    If I overexert cognitively I get PEM like flu etc but also I get reduced cognitive ability. I cannot take in more information.
  4. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I can’t support something if there’s no receipt. This is why screenshots are important. Especially these days on X where you can edit etc. Anyway, headline news is Garner’s n=1 result still receiving far too much attention.
  5. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I feel like there should be some caution around “all the pwME who aren’t even claiming” as well. The way things are in the public discourse just now, it will add credence to the “they’re not really ill, then, if they’re not even claiming and are managing without”. Everyone wants stats on pwME...
  6. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    She would like to ask first whether people who are severe are getting PIP, before she acts. Still makes no sense to me.
  7. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    For me, I want to understand what she’s trying to evidence and why it’s relevant. Because I suspect that the evidence won’t be forthcoming and there are other ways to account for that. And to be honest her method worries me, it’s a bit amateur, no? “I did a poll (on Twitter) which is my source...
  8. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    We know how many people will be affected, it’s in the FOI which she posted. She seems to want to know how many severe people claim pip.
  9. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I still want to know “why”? what’s she hoping to achieve? 5k severe people get pip and don’t have 4 points? How does this info help? Hasn't she heard of the 25% maybe she should just ask them. edited - I got confused and thought she was writing a brief, but she’s doing a brief survey.
  10. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe they were involved to some extent…. I sadly once worked with someone who contacted interpol regarding what they believed to be a fraudulent sick note from an overseas clinic. Their involvement was to very politely tell him this isn’t their remit. I can only hope it gave them a good laugh...
  11. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    It seems she just wants everyone who is severe and gets pip to answer that they are severe and get pip? I’m sorry but I don’t understand the aim of this, if that’s all she wants to know she could have added a voting button. I think the chances of all PIP ME claimants responding to this are low...
  12. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He’s screaming into an echo chamber which is becoming a void and his relevance is decreasing
  13. MrMagoo

    2025: UK MEA Article and Video: ME/CFS: What you need to know about the disease

    There are a category of approx 20 people who apparently have been helped by GET or Brain Training or LP or that Chiropractor thing, they never STFU about it, you should have no trouble working out who they are or what treatment they are promoting.
  14. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Well sometimes you can’t appeal. If you’re claiming only one area should be 4 but you got a 2, there’s no material difference in the award so even on an error of law you wouldn’t be granted an appeal.
  15. MrMagoo

    How to read while lying completely flat?

    I have just bought one of these stands for £15. So far I love it! It is lightweight, not sure it would survive being dropped/chucked about but it holds the iPad firmly, you can adjust the angle it’s held at (the gubbins are like gears so it stays in place well) I’m a bit of a fatty so it just...
  16. MrMagoo

    Pathophysiology of sleep disturbances/unrefreshing sleep in pwME?

    Many of us have it, you’d think there would be some biological evidences?
  17. MrMagoo

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    We do know how many are affected by the proposed cuts, and the % of those with fatigue related disorders as their main reason for claiming PIP. It’s on the benefits thread, I can’t recall the figures but we do know.
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