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  1. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I don’t think we are allowed to discuss politics, but it looks like in order to vote this through Labour will need Conservative backing despite having a majority.
  2. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    A 1% increase per year is nothing to get upset about?
  3. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    It’s lumped in with RA and Fibromyalgia too. If it were just LC and ME that would be bad enough.
  4. MrMagoo

    Causal Relationship Between Diet, Lipids, Immune Cells, and Chronic Fatigue Syndrome: A Two-Mediation Mendelian Randomization Study, 2025, Li et al

    And further necessary questions Do they smoke??? Did their parents divorce in their childhood? How many of them are Sagittarius? Who has blue eyes?
  5. MrMagoo

    BBC: "At-home cervical screening tests offered in England" (implications for PwME)

    Excellent, I’ve been making and cancelling appointments for this for a few months. I wondered what happened after the at-home trials were successful.
  6. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    https://www.theguardian.com/politics/2025/jun/23/labour-mps-launch-major-rebellion-to-stop-benefits-cuts-bill Guardian report!
  7. MrMagoo

    PIP cuts won't fix ‘alarming' benefit fraud, experts warn Labour

    I wonder what the cost of the “errors” in awarding pip points is - the cost to us, the people not being awarded 4 points because we can answer the doorbell, so therefore can cook a meal.
  8. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    My local MP sent this reply. As I’m in Liverpool, it’s reassuring (but not surprising) to hear that there are MPs standing firm against the proposed cuts. Thank you for contacting me regarding cuts to welfare benefits. I appreciate you getting in touch with me regarding this issue. I have...
  9. MrMagoo

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Imagine running a church and selling bleach as a miracle cure instead of Jesus!
  10. MrMagoo

    Myalgic Encephalomyelitis., M.E. a cure ?. Joy Anthony

    Certainly it’s worth having your thyroid checked and especially women from middle-age are at risk of Hashimotos. I’m pretty sure in the UK it’s going to have been included in a full bloods panel if your GP has run one. As I say, I get one yearly anyway (good GP thought that as I wasn’t “getting...
  11. MrMagoo

    Myalgic Encephalomyelitis., M.E. a cure ?. Joy Anthony

    So did she actually have hypothyroidism or Hashimotos etc rather than ME/CFS? I get my thyroid hormones checked in my annual bloods, last year for the first time they became borderline.
  12. MrMagoo

    How should biological researchers present their results about ME/CFS to the media - discussion thread.

    I mean alongside Cancer, HIV and MS so we are automatically covered once diagnosed. Those were added purposely to reduce discrimination.
  13. MrMagoo

    How should biological researchers present their results about ME/CFS to the media - discussion thread.

    I want us putting in the Equalities Act, like they had to put MS in
  14. MrMagoo

    How should biological researchers present their results about ME/CFS to the media - discussion thread.

    Journalists, especially on UK tv are all trotting out the “it is real people, used to think it wasn’t but we know that was wrong” line. In the court of public opinion, it’s real, it’s not made up or “all in the mind”. The fight with medics and scientists is a different matter, but that isn’t...
  15. MrMagoo

    How should biological researchers present their results about ME/CFS to the media - discussion thread.

    From a comms and PR point of view, I think Chris did the right thing - he used the interview to talk about his study, which is what he was there to do. Silly questions, ignore them. He’s not there to dance to someone else’s tune.
  16. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Ok. The whole thing is just a big “go away” though, isn’t it. Manage yourself. Don’t bother the medical staff with this.
  17. MrMagoo

    When is an illness classified as neuroimmune?

    It’s a side issue but I feel like the “wellness industry” has hijacked “inflammation” recently. Lay people keep mentioning to me about reducing inflammation in the body, or ME being “inflammation” and I don’t think they’re referencing the activity of Cytokines or T or B cells or immune response...
  18. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Thanks Trish. So they both reference “you may have been intubated in hospital” and that C19 can cause sore throat, laryngitis etc don't strain to talk and keep hydrated In conclusion, nothing more exciting than “what to do if you lose your voice/have laryngitis” and there’s no advice on what...
  19. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I created it -by pasting the link to the paywalled version in the box on the archive.ph homepage
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