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Tragic. meanwhile, in this century….do you know what made me worse? CBT and GET “not recommended for ME/CFS” (NG206, 2021) hey this is fun! Am I doing a science?

Ah let them create a fuss about security. Nothing will happen. If they have received credible threats then they can provide the evidence on request. Maybe the PRCwill send some sleeper cell spies.

Thee was a twitter post about block booking the free tickets (and not going). I would have liked to go and do some Free Speech but I can’t. Physically. As in I can’t speak or sit up then. I’m not sure if I’m one of the threats, surely not. And we have mutual connections- given we live in the...

I’d love to but I literally can’t. Going to the opticians that day, so definitely won’t be able to speak by evening, and sitting up will be beyond my capability, too. Just release them, it’s not even in a huge room! Don’t let him say he’s being silenced because activists have taken the tickets...

Ah - he recovered from post-Covid condition. I don’t know anybody who had “post-Covid condition” maybe that’s something you can recover from using neuroplasticity. Completely different from Long Covid or ME/CFS. I really want to go and ask difficult questions.

Nah, let them have their echo chamber. Anyone with any sense about the oppression of scientists in China isn’t going to hear anything of interest from him.

Maybe he’s there as balance, as someone who shuts scientists up?They’ll be asking him why he takes up so much space?

Iam very tempted to go and assert some free speech rights of my own, but I’ll never manage it!

He might be attending in his capacity as someone involved in disease and global healthcare.type work (hopefully) rather than a self-diagnosed and self cured ME/CfS/Long Covid/Post Viral Malaise thingy-whatever. ETA- I think also the location plays a part in who is attending.

I’d go along, but I can’t. And I sort of don’t want to.

Any cult/MLM/con artist will lead people up a path, and after a good halfway through they “jump the shark” and say something ridiculous. By which time, someone is in too deep to realise how bonkers it sounds. That’s why when we hear about it in isolation (aka verbally abused rice decays faster)...

Why do NEST class it that way when the WHO and DwP class it as neurological?

With the PIP you have to be able to do a thing -reliably -repeatedly (as often as needed, like cooking two meals per day) - to a reasonable standard - no longer than twice as long as someone without your illness So I can indeed walk 200m, but if I do that once in a day I then can’t walk more...

PEG-J was already in place and not delivering enough.

I’m not eating it! Apparently, the rice I call a “good-for-nothing See You Next Tuesday” will look visibly degraded, as compared to my special-wecial true love rice.

I’m no scientist but I’m thinking of having a go at this rice theory. So I just make some rice and I guess leave two bowls in about the same place? But one I am going to quietly verbally abuse. And the other, I will whisper sweet nothings to. I wonder why people in the olden days didn’t just...

I’d like to see it as an app or online game. Where people get little criticisms of what they’re doing (why did you throw a 5? You should have thrown a different number!) bubbling up the side.

No idea but he was certainly holding court there for a while. I think after he went, so did the CFS service (which is perhaps a good thing)

I saw Prof White at Barts 2007

So what are the challenges to overcome in the situation? TPN is being given at Conquest Hospital. Conquest Hospital seem to be saying they can’t let her stay much longer. Conquest Hospital and the local Health trust don’t do TPN “at home”. The resolution she wants is TPN at home. What is...