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  1. MrMagoo

    Why can't hospital outpatient clinics cope with patients who can't sit for long in the waiting room? Or can they?

    That’s normal in Uk too. I did once get a bed whilst waiting for discharge, after 8hrs I had a migraine. I was the last of my “group” to be seen aka they forgot about me as I wasn’t in the waiting room. The only place which had a bed for me to use was the DWP medical assessment place for work...
  2. MrMagoo

    Why can't hospital outpatient clinics cope with patients who can't sit for long in the waiting room? Or can they?

    I believe that hospitals don’t have the space for lying down somewhere - the modern ones are being built with not enough beds, wards or waiting room chairs. So that’s probably the biggest hurdle. The second is how “weird” dynamic disability is. I”ve been thinking I’d love to go to the theatre...
  3. MrMagoo

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    Thee is a link to the moved posts though, for anyone who wants to see the more detailed discussion? It just gives choices.
  4. MrMagoo

    Hoarse raspy voice- how and why?

    Thank you. I think I’m “one and done” and the exercises are helping already. I was sure it was muscle tension dysphonia, the advice is to see a SALT to review your individual way of using your voice box, they don’t like generic advice for this, but even just understanding that I tense up and...
  5. MrMagoo

    Hoarse raspy voice- how and why?

    Thanks. It also made me ponder, the last ENT wanted me to go to counselling. Was he trying to address the issue of “stress” the wrong way? Being upright and operating is stressful for me, it puts a huge strain on my physical being. It’s not stressful because I’m anxious, I’m in pain and...
  6. MrMagoo

    Open Letter to the British Paralympic Association About the Need for a Caveat

    I think it’s a marketing phrase and it’s used inappropriately by the Paralympics Organisation. It’s true that every body moves, to some degree, starting with breathing in and out. However there are a large number of people who are unable to take part in the Paralympics because of their...
  7. MrMagoo

    Hoarse raspy voice- how and why?

    Well. I had my appointment and I couldn’t have imagined it would go so well! The consultant had a senior speech therapist with him. They did the camera up my nose - then asked me to make various noises. They removed the camera and played back the video of my voice box to show me where the issues...
  8. MrMagoo

    Boom and bust, another ME/CFS myth? - ME/CFS Skeptic blog

    See, it’s so easy to just invent BPS nonsense!
  9. MrMagoo

    Hoarse raspy voice- how and why?

    I’m already on medications to control my actual reflux which predate the issues.
  10. MrMagoo

    Catastrophizing, time to ditch the term? - ME/CFS Skeptic blog

    If anything I’m weirdly optimistic. When some people say “he doesn’t know his own strength” I’m the opposite, I consistently fail to understand my own weakness. I don’t appreciate that I can’t do things. I put things off that I’m definitely going to get round to. I absolutely agree to attend...
  11. MrMagoo

    2024 Stanford MECFS meeting

    Night sweats cause sweat which causes prickly heat, I wouldn’t find that so odd. It’s interesting data but also it’s very lacking in detail. I’d want to know date/time/menstruation/gender alongside it for a start.
  12. MrMagoo

    2024 Stanford MECFS meeting

    Ok thanks. I disagree with “collections of symptoms…Co-occur more than you would naïvely expect” the Co-occurring symptoms are exactly what I’d expect, I’m not sure why this is of note.
  13. MrMagoo

    Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template

    I feel like Gladwell’s involvement is a relic of an earlier time. Things have changed.
  14. MrMagoo

    Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template

    Of course it’s not, but I think you’re taking it personally because of your involvement. I’m sure if you can check the log of the comments you will find that one. That doesn’t detract from my point that consideration should be given to a style guide, and focussed communications which don’t make...
  15. MrMagoo

    Catastrophizing, time to ditch the term? - ME/CFS Skeptic blog

    I really feel the problem here is the intense desire for there to be a problem. Where studies have been carried out, “catastrophizing” isn’t really found, or if it is, it’s not at a scale which is problematic. End of discussion. No further efforts required. We can all access talking therapy...
  16. MrMagoo

    2024 Stanford MECFS meeting

    Interesting, I use bearable a few years ago. I liked it but then Visible came along. In simple terms, what is this data showing? I am hard of understanding data
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