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The post was shared again (after the original one disappeared) but this time with a different email address, so I updated my post!

Author: Litsa Dremousis, who has written similar articles for the Washington Post before, from the perspective of a pwME. "Congress has allocated $1.15 billion to the National Institutes of Health for long covid research, and ME advocacy groups such as M.E. Action Network are lobbying NIH to...

@Michiel Tack 's rapid response to the BMJ's "Four members of NICE’s guideline committee on ME/CFS stand down" article Dear Editor, The article by Torjesen on the NICE guideline development committee for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) does not provide information...

Abstract SARS-CoV-2 survivors may report persistent symptoms that resemble myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). We explored (a) ME/CFS-like symptom prevalence and (b) whether axonal, inflammatory, and/or lung changes may contribute to ME/CFS-like symptoms in SARS-CoV-2...

CASEY STONER TALKS ‘TERRIBLE’ CHRONIC FATIGUE, DUCATI’S ‘ZERO LOYALTY’ TO RIDERS For those who don't follow motorbike racing, Casey Stoner is a two-time MotoGP world champion, who - as a surprise back then - retired at the age of 26, at the very height of his career: Stoner now believes a...

3rd vaccine: Pfizer, after two shots of AstraZeneca (the AZs only produced a low number of antibodies in me and I had no T-cell immunity). As for the first two AZs, I had pretty strong, but otherwise typical vaccine reactions on the day of the vaccination and the following day. My ME/CFS...

From Facebook: Dr Charles Shepherd stands down from the NICE guideline committee with immediate effect Dr Shepherd says: "Following the publication of the draft of the new NICE guideline on ME/CFS for Stakeholder consultation in November 2020 it has become increasingly difficult for me to...

My sister has just sent me an article about this, commenting (she was watching the race): "He looked like s*** , we thought he was going to faint right there." Unfortunately, many of these top sportsmen don't seem to take a (properly long) break from competing in such instances (at least early...

Hm, my surgery was in 2004 (I was very young, my knee problems arose in my teens due to the badly shaped bone). Maybe it wasn't universal for every surgery everywhere. I had no idea it wasn't the norm, looks like I was kind of lucky! :emoji_shrug:

Didn't you get injections to prevent thrombosis? I got those every day for a few weeks afterwards if I remember correctly. My father had to be the one to inject them after I was taken home and he was way more frightened of this than me. :laugh: But mine was a pretty invasive surgery, my entire...

Hungary too: you can already apply for your third vaccine four months after your second jab. Anyone, not just old people, but people in risk groups are probably prioritized again. However, now your vaccine has to be a different type from your previous ones (so no mRNA for the third time, etc)...

You're probably right. My cognitive function has been pretty horrible today, my ME brain probably saw that first CF reference and just read the whole article that way somehow. :emoji_shrug:

Psychology Today: The Link Between Long Covid and Chronic Fatigue The bad: the article keeps referring to ME/CFS as chronic fatigue or post viral exhaustion. The good (meaning that they stress this is not psychological): "There are reports that some physicians are misdiagnosing patients with...

Preprint: Breakthrough Symptomatic COVID-19 Infections Leading to Long Covid: Report from Long Covid Facebook Group Poll, 2021, Massey et al Abstract Vaccines have been shown to be extremely effective in preventing COVID-19 hospitalizations and deaths. However, a question remains whether...

Research into long-term Covid may also help people with another syndrome Very good article on a news site (not one of the major ones, but still, it's news site). Again, mostly based on foreign articles. In short: - research on long covid may help understand ME/CFS as well, because the two are...

Author: Richard Meade Research Fellow in Economics, and in Social Sciences & Public Policy, Auckland University of Technology He also used to suffer from ME/CFS and compares the two in the article as well. "The social costs of long COVID should not be underestimated. For example, suppose an...

Long Covid has shed new light on ME (chronic fatigue syndrome), once disparagingly dismissed as 'yuppie flu' – Professor Eleanor Riley Opinion piece: Professor Riley gives a brief but very good summary of ME/CFS. For us, there's not much new information there but it's good to see such articles...

I saw this in a SolveME Facebook post: Study Alert: Our friends at...

Abstract Since its emergence in Wuhan, China, covid-19 has spread and had a profound effect on the lives and health of people around the globe. As of 4 July 2021, more than 183 million confirmed cases of covid-19 had been recorded worldwide, and 3.97 million deaths. Recent evidence has shown...

Sorry for hijacking the thread again but the antibody saga unfortunately continues! From the previous episodes: very low number of antibodies in a private lab result (blood test, antibodies against S spike protein). A similar test at Semmelweis University was clearly positive. I'm in the same...