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Titles on YouTube videos often change during the first day or three, particularly on the high traffic, more commercially oriented channels. The channel owners typically try a few different titles to see which one gets the most views and go with that. Not all channels do this.

Long-Covid patients would need daily physiotherapy and a special diet, and of course psychological support. Yes, Virginia, the world really is insane.

I think he is beyond help and should be fully retired from all positions of authority and influence, effective immediately. That fact alone should render a person unfit for further involvement in our care. Or anybody else's.

I am also in the camp that is very wary of lumping different labels together. Sure there might be substantial advantages in numbers, but as the history of all this shows there are also extreme risks, as noted by others.

This may not be the best example. When I got sick among the first symptoms I had were changes in basic sensory input, including smell and touch. Everything just felt different, in a roughly comparable way to when you have a bad flu or a fever. Those changes were immediate, often subtle &...

And so that in the clinical practice they understand the limits of the evidence base, which doctors in general are perhaps not so good and consistent at doing. Given what is currently regarded as 'placebo' is a mishmash of various factors, including confounding non-therapeutic factors (in...

Ironically one of the main things that saved HIV/AIDS from the psychosomatic fate was that they were indisputably dying in horrible and unusual ways. That is hard to write off to just being a psychosomatic disorder. Though a few did try, and some of those went on to die from AIDS...

Looks good to me. Thanks to all who contributed. :thumbup: One comment, and one suggested minor rewrite: Simple advice on judging activity limits based on personal experience is all that is justified. This is the core of activity advice. Any activity. Explain to patients the basic concept of...

'A very very detailed approach to pacing is super super important to recovery'. :grumpy: :grumpy: :grumpy:

Looks to me like a case of OFNDS (Over Fitting Non-robust Data Syndrome, pronounced 'offends').

At one center (Center for Functional Disorders), 41 out of 44 patients with an ME diagnosis have been recoded as functional disorders. This is so blatantly dishonest, corrupt, and cruel.

What a nightmare. :eek:

Good to see substantial funding for biomed work. Well done. :thumbup: How productively it is spent remains to be seen.

Good evidence for misdiagnosis and psych bias. Plus possibly some kind of a prodromal phase, at least for some patients.

Esther Crawley. No doubt others too.

gullibo biasebo hellnocebo :sneaky:

Call to arms. Cult must feeling a bit threatened. Wagons need circling ever tighter. Sacred texts need another round of scholarly incantation to reinvigorate the brethren's commitment to the cause.

It remains my view that the vast majority, perhaps even all, of everything we currently 'know' about ME/CFS is just the downstream secondary and typically contingent consequences of the as yet unidentified primary underlying pathology. All of what we are seeing so far is just the normal...

Yep. This shit is now firmly entrenched in all of medicine, and doing massive harm. It is, incidentally, also destroying medicine's credibility on a massive scale. But they are in complete denial of it. More than a little morality play judgement in it too. Mostly just a giant excuse...

Silicon Valley is an insular hotbed of hivemind tech genius-idiots, and a stark example of why technocracy is a bad idea.