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  1. Sean

    Protocol Breathing control training as a treatment for functional seizures (BREATHS trial): a multicentre, assessor-blinded, randomised... 2026 Kanaan et al

    Exactly. How do they now it is (unjustified) stigma/fear of psychiatric diagnoses and therapies that is the problem, as opposed to those diagnoses and therapies being false, and useless, and sometimes a lot worse than merely useless, and hence the stigma and fear of them being entirely...
  2. Sean

    Effects of a Rehabilitation Programme Focused on Energy Management in People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome 2026, Portugal

    which aims to empower participants to manage their energy effectively, At what point did the profession demonstrate having the requisite knowledge to be able usefully inform patients on this?
  3. Sean

    British Association for Counselling and Psychotherapy 'Letter to the Ed' by Emma Hampson

    Just shows the utter contempt in which we and our story are held by the medical establishment.
  4. Sean

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    They want the responsibility, and hence the blame for failure, to be in our hands, while they retain the power to define us and our health issues and lecture us from on high about how to handle them.
  5. Sean

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    IIRC, it depends on when the container was made, as the toxic paints stopped being used a few years back. However, if it has a wood floor, then it may well be treated with strong persistent insecticides.
  6. Sean

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    Lots of videos on Youtube about small houses, with lots of good ideas about the details, including layout and how to optimise the use of space.
  7. Sean

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    Apart from anything else, it shows considerable contempt for our hard earned experiential understanding of it, which is why they have to include a component in their definition that says we have perceptual pathology. They think that we are just ignorant delusional idiots. It is a maddening and...
  8. Sean

    The Stigma of self-report in health research: Time to reconsider what counts as “Objective”, 2026, Alwan

    Nor does the value of subjective self-report measures mean they can over rule objective measures when they contradict.
  9. Sean

    Why does some ME/CFS become very severe? Discussion thread

    Though I have experienced gut troubles, including IBS, and still do. Just never nausea.
  10. Sean

    The Stigma of self-report in health research: Time to reconsider what counts as “Objective”, 2026, Alwan

    The issue is, of course, not the importance of subjective data. It has its place. The issue has always been: is it adequately controlled to reveal the known problems with subjective self-report data so they can be factored into the analysis? If it has been then it is useful data. If it has not...
  11. Sean

    Rehabilitation needs of long COVID patients in British Columbia, 2026, Moecke et al.

    What this stuff looks like is nothing so much as very hard evidence in favour of Upton Sinclair's dictum that: It is difficult to get a man to understand something, when his salary depends on his not understanding it.
  12. Sean

    Review Efficacy of internet-based cognitive behavioral therapy on somatic symptom disorder and common related functional disorders:... 2026 Liu et al

    iCBT was also no better than treatment as usual. "The effect of iCBT was not significantly different or slightly higher than treatment as usual after treatment" So what additional benefit is it offering?
  13. Sean

    Why does some ME/CFS become very severe? Discussion thread

    Nausea is one symptom I have not experienced on any significant basis.
  14. Sean

    The New Yorker: Did a Celebrated Researcher Obscure a Baby’s Poisoning?

    How many times can Horton be so wrong, behave so contrary to scientific and ethical principles, in such a blatant hypocritical manner, with such appalling consequences, and yet face zero accountability for it, and still remain so influential and honoured? And he ain't alone. Something sure is...
  15. Sean

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    I am increasingly of the view that humans are rarely if ever sedentary (on a prolonged basis) for no good reason, and the real reasons for being sedentary rarely if ever include psycho-drama morality-play nonsense. That characterisation is just the superficial narrative mythologies we spin to...
  16. Sean

    Norway: 2025-2026 Chronic fatigue and ME/CFS Guidelines - development

    Yeah, if I had to bet I on it would put my money on the psychosomatic gang trying to pull another public dummy-spit stunt like they did with NICE. But we will see soon enough. Fingers crossed.
  17. Sean

    Why does some ME/CFS become very severe? Discussion thread

    Indeed. Nothing to apologise for. Furthermore, people have a right to tell their story, and there are very few places ME/CFS patients can do that in safety, to an understanding and sympathetic audience.
  18. Sean

    Healthcare Consumption and Work Absenteeism [post COVID]: The Role of Cognitive-Behavioural Factors…, 2026, Verveen, Knoop+

    Sicker people tend to score worse on measures of work capacity. All of which could easily be explained as being caused by a chronic physical condition. Cutting edge stuff, isn't it.
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