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I'm under a rheumatologist at the moment, who's actually quite helpful. The last correspondence I got from him after a telephone review appointment contained some innaccuracies, although they weren't malicious in anyway. The letter was sent to my GP, as is standard practise. I'm going to write...

This has not appeared yet. I suspect it must still be in peer-review.

But also that a *subset* of LC patients actually have PVFS and will 'develop' ME/CFS.

@Jonathan Edwards Any input here, our resident rhumy?

Inflammation of the fascia is exactly the conclusion I came to after lots of google-based research. I know this is an issue for me because the whole right side of my leg (the IT band) is very tough (hardened), tendinous, and sensitive. There are parts where it almost feels scarred, and it...

I've had some 'soft tissue' issues appear over the past few years. There is a small area where my tricep meets my elbow joint on the back of my arm that gets sore and it just won't 'heal'. I also have issues with the area around the base of my thumb on that hand. No injury for either, but they...

This was really my point in my last post about Charles Shepherd's comments. I cannot relate to those with long-Covid who are coughing and sputtering (and in fact vomiting) because they're attempting to go up a stair. It showed these patients on Dispatches last night. Those are real time...

I thought it was reasonably good. Lead of Bradford long-Covid clinic said they were using regimented exercise at start. Wasn't working, so have moved to energy management approach. Edit: How many may have been harmed in those first six months if they were indeed pushing GET (or something...

If other types of antibodies are raised, does that mean the virus is reactivated, or simply that the immune system is pumping out more antibodies? Edit. I think Jonathan's post has just answered this.

Charles S writes I think we have to be careful here. My feeling is that for most long-Covid patients the mechanism(s) driving this activity-induced fatigue is probably not going to be the same as that/those in ME/CFS; the former seems to be associated with damage and impairment of the...

Two responses to the Miller, Garner, and White Guardian letter, one from Charles Shepherd. https://www.theguardian.com/society/2021/mar/14/when-rest-may-be-best-for-post-viral-fatigue

Yes, I agree with everything you've said. Looking for patterns is absolutely natural. In fact as humans we often see patterns that aren't there. And the point about obsessing over symptoms — (i) i think there is (recent?) evidence this is no more significant in ME/CFS than other illnesses or in...

I'm not denying anyones symptoms, so I'm sorry if it came across that way. I am simply acknowledging that this phenomenon exists. If you've found what you think is a causal link between something and your symptom severity, then that's great. Paul Garner thinks he has found a causal link between...

Precisely. He was at the optimal time for recovery from PVFS.

Actually, I do recognise something similar. Especially from patient groups on FB! Some patients can be way too fast to attribute their symptom fluctuations to all sorts - something they ate, something they did, mouldy wall, changes in the weather, new supplement, etc. They can get really worked...

Another patronising study name.

What I found most interesting about the letter was the suggestion that GET should be rolled out in long-Covid clinics before any clinical trial could test its efficacy. That seems wrong to me.

The key here is the argument that the *trials* don't show evidence of harms. I think we all know many reasons why they might not, but this needs to be communicated properly by someone who knows about this stuff.

We usually have people on hard. @Robert 1973 is always very good with letters. I'd do it myself but I don't know the trials inside out. The elephant in the room is that the patient experience / surveys are completely disparate with the trial findings as far as efficacy and 'harm'.

I hope someone who knows these trials inside out can put together a response (perhaps in a Letter to the Guardian).