Search results

I literally started wincing when I saw that acronym, because the BPSers love stupid acronyms. We should quit using them altogether. Aside from that, this study is promising to provide correct results due to its large size.

Fixed.

Yes, connecting the pathology of ME to hibernation is only a guess.

I'm really happy about this review. It's a considerable advancement in literature on long Covid, which is finally catching up to what we've known all along.

Me too. If we find it in LC, we should attempt to replicate it in ME. This work reminds me strongly of Jared Younger's work (S4ME tag) on neuroinflammation. Personally, I believe it's a reasonable guess that low-grade neuroinflammation is a cause of ME.

I have shorter abstract, based on the you guys are getting paid? meme: Healthy person 1: Before the pandemic, I got out 5 times a week Healthy person 2: I got out 3 times Healthy person 3: I went out every weekend or so PwME: Wait, you guys are leaving the house?

That's really good news. The trial application specifies 114 participants. I'm very happy about that.

I'm going to second everyone else's concerns. Stem cells have just one proven application, and there's a lot of quacks out there claiming they're a cure-all. It's fairly unlikely this will lead anywhere.

Source: https://me-international.org/en/blog/clarity-for-all/ as quoted in DX Revision Watch's earlier post I disagree with that. ME, CFS, and ME/CFS are just different names for the same thing. And a code for PEM is useful for people experiencing PEM not long enough to qualify for an ME...

So...today we learned that in America they're testing an antibody drug and in Britain they're testing breaks from sitting? Talk about a microcosm of LC research.

Anti-SARS-CoV-2 Monoclonal Antibodies for Long COVID (COVID-19) (outSMART-LC) https://clinicaltrials.gov/ct2/show/NCT05877508 Summary: This company, Aerium Therapeutics, is trying antibody against the coronavirus in long Covid. It's double-blind with an expected enrollment of 30, with about 20...

Post copied from the LC in the media thread

And I thought American morning shows were crass.

He doesn't get it. They got over a billion dollars over two years ago and haven't started a clinical trial. Trials of generic drugs would be cheap and you could even do them remotely. Has the FDA announced incentives for long Covid? Proposed ME or LC treatments should be designated as...

That's scary. While making definitive statements about a stranger's coworker's health is impossible, it reminds me of the story of Lee Holloway. He co-founded Cloudflare, a massive networking company, and got early-onset dementia in the middle of his career. When his personality changed, people...

I second requesting an oral sedative.

I am now that I read this abstract.

They're probably using an extremely vague definition of FND to reach that conclusion, just like how BPS researchers use extremely vague definitions of ME. Real FND requires very careful evaluation. Their definition is probably "we found the most ableist neurologist we could, and he opined 1/6 of...

It's utterly disgusting how doctors treat people with chronic pain. Acting like the pain is a character issue. Disturbing. Medicine exists to mitigate pain and suffering. Not only is chronic pain dismissed, it's underfunded. Chronic pain is such a common and serious problem that developing...

Too late, I've already progressed to thinking I'm seriously ill.