I read Stephen's Twitter thread on it. I don't see how this hypothesis is any more compelling than the metabolic trap, or any other hypothesis. Prusty is convinced but researchers are often overconfident in their discoveries. I will watch how this develops. Perhaps his paper will be compelling...
Here's the online version:
UK’s first Long Covid clinic treating Brits left needing specialist care
https://www.mirror.co.uk/news/health/devastating-toll-long-covid-revealed-29949418
That's heavily suspicious. Perhaps they stopped using the actimeters because they realized it wouldn't show any actual improvement. Or maybe there's a more innocent explanation, but the purpose of sticking to your methodology is to stay above suspicion of such shenanigans.
This is among the best works on very severe ME, depicting its tragic nature in frank language with sharp brevity. The most striking aspect of this thread is how he writes about her almost as if she has died.
The world needs to understand how incapacitating ME is, and the enormous burden it...
We have a similar rule in the US. Government-funded research must be made open-access within 12 months, and in 2026, it will have to be immediately. If my tax dollars go towards research, you bet I want to be able to read it.
Transcript from your local fox:
According to Dr. Nath, they have large volumes of research to publish from the ME/CFS intramural study, which is promising. The GWI study is already going which is excellent.
It's obvious that the author doesn't understand what ME is.
If he did, he'd know that ME was also a severe disease.
This is why ME should never be referred to as chronic fatigue syndrome. It confuses everyone, even scientists. It's not tiredness. It's a devastating disease of exertion intolerance.
I'm used to viewing everyone in the ME universe as a saleman and fast-talker. If they're not blabbing for money, they might just be blabbing out of pride. Event totally honest people deceive themselves.
That's not an admission of defeat, just that the first LC treatment won't be a cure. Never is the initial version of a technology perfect and medicine is no exception. Apparently they also asked what "toxicities" patients would be able to tolerate. My answers to those questions could be...
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