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  1. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    Still, they're making progress. At last update, just over half were asked for samples. Thus, we're likely around 10,000 samples.
  2. RedFox

    Simmaron’s Dr. Avik Roy has won an NIH R21 grant for “ATG13: A new player in MECFS.” April 2023

    I believe this is a useful line of research because I have an interest in low-level neuroinflammation and ME.
  3. RedFox

    Long Covid is being erased —again—Ed Yong

    Those studies aren't half of pwLC. They're half of pwLC who make it to an LC clinic, making them much more likely to be severely ill.
  4. RedFox

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    Absolutely. There's plenty of examples of government mismanaging projects, but I think LC research is more vulnerable to this because it's not taken seriously.
  5. RedFox

    Preprint medRxiv: Risk of new-onset Long Covid following reinfection with SARS-CoV-2: community-based cohort study, 2023 - Bosworth et al

    Wealthier people are more likely to have time to read about long Covid and thus understand what it is.
  6. RedFox

    Article: What happens when you don’t recover from Epstein-Barr virus?

    It's utterly disgusting that an organization that supports vaccines refuses to take post-infectious disease seriously.
  7. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    No, they can't recruit from other countries because their control population is from the UK Biobank. If patients were from all over the world, the controls and patients would no longer be matched. They used the biobank so they'd only need to gather half as many samples.
  8. RedFox

    Hypothesis: inflammatory acid-base disruption underpins Long Covid 2023, van der Togt & Rossman

    Her treatment regimen is acid-base woo all over again.
  9. RedFox

    News from Scandinavia

    Long-term disability?
  10. RedFox

    Long Covid in the media and social media 2023

    PBS has nailed it again. Lots of good quotes:
  11. RedFox

    Preprint medRxiv: Risk of new-onset Long Covid following reinfection with SARS-CoV-2: community-based cohort study, 2023 - Bosworth et al

    If your first infection has a 4.0% probability of causing long Covid, your second has a 2.4% chance of giving you long covid, and the risk decreases by the same ratio (40%) each infection, your cumulative LC risk approaches 10% as the number of infections becomes large.
  12. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    Yes, having more participants is like having a higher gain antenna, you pull the signal out of the noise. Man, I really hope we get enough participants to show something strong. If we found several several genes that had nothing to do with cognition, with adjusted p of 0.0001, that would blow...
  13. RedFox

    Research news from Bhupesh Prusty

    At a very minimum, 10% of my suffering is due to lack of acceptance as a biological disease.
  14. RedFox

    Research news from Bhupesh Prusty

    I'm going to wait until their paper is out. We've been burned too many times by researchers hyping up their own findings.
  15. RedFox

    BPS attempts at psychologizing Long Covid

    There's significant pushback. There were 56 comments when I opened it, and about half were supportive of LC, half dismissive.
  16. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    Constantly updating participant numbers is unnecessary, but an update every couple months would be very informative.
  17. RedFox

    BPS attempts at psychologizing Long Covid

    Considering the alternative, I just might go with Windows.
  18. RedFox

    BPS attempts at psychologizing Long Covid

    If there's software in my head, I hope it's not from Microsoft.
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