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They're gonna make it like the electromagnetic spectrum: Long Covid Very long Covid Ultra long Covid Super long Covid Extremely long Covid Tremendously long Covid Infrared Covid Visible Covid Ultraviolet Covid X-ray Covid Gamma Covid

I got a sleep test when I was being evaluated for ME. It was totally normal except I couldn't sleep much in the lab.

This will severely harm pwME if there are false positives. If it confirms the presence of a mental condition secondary to or unrelated to ME, there's a high risk clinicians will believe it's the cause.

What if ME and FND could have similar pathologies? Perhaps FND causes mostly overt neurological symptoms because the pathology only affects specific regions of the brain, where ME affects more of the brain and causes problems in other parts of the body.

As we speak, ChatGPT is sending hundreds of threatening emails to Simon Wessely, Peter White and Trudie Chalder.

The first ME drug is likely to be a treatment rather than a cure. With no competing treatments, the inventor will be able to demand exorbitant prices until the patent expires.

It's a good sign when money is flowing into developing drugs for LC

Snakes on a plane? How about...rabbits on a tilt table!

The effect of long Covid on the digestive system is an important, yet under-researched area. While I'm not a fan of their use of the word functional, I'm otherwise pleased.

A subtle problem with ME is that it clashes with a common word, making it difficult to search for online and sometimes creating ambiguity. Recently I came across this article, with a photo of a woman holding a sign that reads, "DECLARE AN EMERGENCY FOR LONG COVID AND ME". A Google search for...

The only way to rename ME would be to hold a huge series of meeting and get buy-in from all major groups: Patient groups, specialists, and health agencies. A critical mass of people would have to commit to a new name and use it until it stuck.

She's at Mayo, which has a very bad reputation among pwME. Hopefully she will convince colleagues about the seriousness of dysautonomia and similarly neglected illnesses.

I would support any name that portrays it as serious and gains popular support. ME, SEID, Ramsay's Disease, whatever. I propose PEM syndrome because it makes no claims about the etiology and highlights its hallmark symptom, which is badly neglected.

According to a friend, PhysicsGirl has ME/CFS due to Covid. Thread here

A friend of hers has announced that YouTuber PhysicsGirl has ME/CFS due to Covid. An Update On Dianna's Health Transcript:

That's a terrible idea. ME, CFS, and all the other names refer to the same disease and everyone with ME experiences severe disability. Nobody will take ME/CFS seriously unless we call it ME, ME/CFS, or something else serious. That's why I exclusively refer to my illness as ME, lack of...

Got my zinc tested at Cleveland Clinic, it was normal.

It's not entirely unreasonable to be surprised that LC causes such a high rate of complications in young, previously healthy people. I was shocked when I learned in spring 2020 that Covid was leaving people in their 20s and 30s disabled. (I didn't know I had ME back then.) And it's good to...

We need to study the relationship between overtraining and ME/CFS.

There's a serious risk people will resort to street drugs.