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Not about ME but parallels are not hard to find. The article is a highly entertaining account of assorted “medical opinion wars” throughout the last 200 years. Less entertaining and more disconcerting: many of our current debates – the diet wars, (anti-)vaccination, even BPS versus biomedical –...

Yes! I'm with you on that one @Barry. Not only is it fascinating to follow somebody else's out-of-the-box train of thought but it's in fact necessary to stop one's own thinking from getting stuck in a rut. Also agree with the numerous skeptics here: a somewhat vague and general hypothesis by...

No food allergies. A few minor Fodmap type intolerances but these don't seem to cause any more or less tinnitus than any other foods. It's more as if the act of digesting food, no matter what, triggers the tinnitus. Maybe something to do with a change in blood flow? Pure speculation, I really...

The email I received gave no indication of how many of the 450 had the MTHFR mutation and didn't mention any publications. They have only started recruiting for the MTHFR study. The intervention itself was for 3 months if I recall correctly. I don't think there was any indication in the email of...

Excellent work @Hutan. Sadly your very reasonable suggestions go soooo far beyond what's currently offered where I live it's not funny. Yet I would like to see even more, at least for severe patients. Home/Skype visits by specialist ME staff should of course be a must. Additionally doctors...

Cort did a typically enthusiastic blog about this project recently, mainly about a small followup study coming out of it (MTHFR defect – folate metabolism) currently being recruited for...

The power of celebrity. A formerly uninterested member of my wider family has been converted by a short interview on breakfast TV. All it took was a former rugby league star talking about his experience with ME. https://www.tvnz.co.nz/shows/breakfast/episodes/s2018-e155 28/8/18, starts about...

Ticked tinnitus which started about the same time as the ME, gets worse after eating (why?) and during PEM, so likely linked in some way. Also get bouts of searing ear pain, mercifully always brief, but not sure of the cause so didn't know what to tick for that. Could be herpes since I...

Haven't tried them myself but these look rather cool. For the fashion conscious with a few spare dollars. Claim that the wool filters are easier to breathe through than other types. Ship internationally. https://www.meoair.com/

While the media predictably have jumped on the high versus low carb issue what the study actually shows (ignoring for the moment other issues such as self- and infrequently reported diets and all sorts of confounding factors) is this: low carb with lots of meat = bad low carb with lots of plant...

I don't but such a study would be extremely interesting. From lurking around a few POTS forums I get the impression that there are three groups of POTS patients with regard to exercise: 1) The first group finds exercise beneficial. They may have to do so horizontally but a brisk ride on the...

My haematologist thinks it's conceivable haemochromatosis could contribute to symptom severity in ME, like adding an extra layer of fatigue on top of the ME exhaustion. As a result he is treating me more aggressively than other patients. He doesn't see it as having a causal role. I guess even if...

Thanks @Simon M for all the intelligent blogging you did while you could. Really hope your current health downturn is a temporary set back. Take care.

Your recall is correct. It was Les Simpson. IIRC, there were a few other, small studies at the time looking into this and not finding anything. Simpson said this was because they were using different (read:wrong) testing methods. He was advocating high-dose fish and Evening Primrose oil to...

Fascinating and thought-provoking article. Very long and has some highly technical bits way over my head. However, well worth skimming over them to get to more interesting bits further down. If Naviaux is onto something with his theory there would be two major plusses: 1/ It would apply to...

@JenB @Jonathan Edwards Would the following idea help overcome some of the potential bias issues you're discussing? And if so, would it be technically feasible, some sort of pop up window when hovering maybe? For each study cited there should also be a brief list of some key points that...

Not commenting on the safety or otherwise of HPV vaccine, I know nothing much about that topic. Just posting this to show that it is possible to move Cochrane to review their own reviews - in an urgent fashion no less. Time will tell the quality of the review of the original review...

I have tried cricket flour, baked into chocolate cookies and similar. Flavour very strong and tends to dominate. Fine if you happen to like the taste. Not so good if, like me, you find it unpleasant. Now feeding the left-overs to my carnivorous plant which would otherwise go hungry since the...

That was my reaction, too. Thanks @Hip. I know nothing about this topic, and it's a rather complicated one, but you managed to explain it clearly. Must have been a massive amount of work!

I was tested and cleared of SIBO because my breath hydrogen levels were low. No mention of methane in the report but as I was sure I'd been tested for both I asked for the actual data from the breath tests. (This was a couple of years prior to my ME diagnosis although in hindsight I believe I...