Search results

Thanks Adrian. This is all a very useful perspective.

I wonder if there is a good regional distribution of people, if questions outside of our health would be possible. Like experiences of health and social care support. If that could be geographically mapped then we could measure performance of ICBs and local authorities. Assess how good any...

I have mixed feelings on what I’ve seen so far Positive take If this is the start of something there are positive signs. Recognition that there are problems and lack of understanding and talk of foundations shows a desire to improve things and seems to indicate this is only the start of a...

Quite impressive levels of administrative sloppiness. Hardly the most important part of this but it does seem indicative Source

I think that gets too complicated and difficult to measure. That’s one problem with these questionnaires, complexity as a result of trying to design for every possible ‘what if’. How would you measure activity? Most methods seem equally subjective and open to issues. Open to suggestions though...

Yes, very much that. Is there a statistically significant benefit to patients of the intervention. All the other complexities in these questionnaires seem to try to get fine grained or subtle detail or discern if changes are present in different areas or in different groups of people occur or...

Lots of really useful and insightful feedback. Thank you everyone. So maybe something like… - Pick 3 activity descriptors that you feel best describe your current limitations and level of activity, you can choose from FUNCAP55 or write your own. Try to pick a range which represents you best...

Me too. But I’ve not got any experience with deeper analysis. Although know its used in quite a few areas. Definitely interesting and could be good when there is lots of data from different sources to analyse too. It would be a lot more work to administer than what I was thinking, which was...

An interesting idea. Sentiment analysis of free form descriptions by people of how they are?

The discussion section of the paper is really interesting and very relevant. I’d quote it but copying from the png/pdf is giving terrible formatting issues which are a faff for me to clean up atm.

Some questions I have, and am unsure of the answers, would appreciate feedback - Would picking 5 descriptors from Funcap 55 be easier/better than completely patient created descriptors or are these too restrictive? - Should he question be can you do these things without significant negative...

Oh I’ve missed that thanks. And I do like what they’re trying to capture, their descriptors are good. But I like the idea of making it even more lightweight. The studies I’ve found best have been a very short weekly questionnaires, I can keep track of a few data points over a week and generally...

Whoops! Sorry. Hadn’t got far into that thread yet. Sorry for the duplication, hopefully it’s a sign of a useful idea for it to have evolved in two different habitats independently!

The problem is FUNCAP is still long, it’s 55 questions and has a 6 point scale. There are a bunch of things which are not applicable so will just get the same answer, it’s trying to cover too much and is too complex. In his proposal, the question is simply how do we measure if a patient...

:rofl: Won’t somebody please think of the… experts

Thinking about how we can measure if treatments work. A lot of the questionnaires and scales seem to try to compare across subjects, which is really difficult for many of us, they don’t fit our experiences or severity. So people try to capture a range of experiences and we end up with huge long...

Just to add, one reason often given for these measurements is to measure outcomes of treatments. And we hopefully will need measures of those. But this level of detail would only seem useful for interventions which have minimal impact (so ones which basically don’t work). And seem completely...

I hear you and empathise @Varda Hoping for autumn to come sooner rather than later. Then again I have problems when I get too cold too. It’s just either less bad or more likely a lot easier to avoid/control than heat. Understanding why his happens to so many of us, and our bodies react so...

This reminds me of the Red Dwarf episode/book Better Than Life