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Utterly weird - they lump ME/CFS and SAD together as if they're the same thing. https://www.simplytreatment.co.uk/me-cfs/ . They lump them together on the home page too: 'ME/CFS + SAD'. How on earth did they arrive at such a bizarre connection? :confused:

Yes! That's the one I was thinking of. "They changed the recovery measure because they realised they had gone too extreme and they would have the problem that nobody would recover." It would be funny if it wasn't so serious.

Heh, yes, that was his 'Mental Elf' blog post about the Good Ship PACE: https://www.nationalelfservice.net/other-health-conditions/chronic-fatigue-syndrome/the-pace-trial-for-chronic-fatigue-syndrome-choppy-seas-but-a-prosperous-voyage/

I recall someone on the PACE team saying they had to move the goalposts because they realised that if they stuck with the original protocol, nobody would have shown as having recovered. Just went searching but couldn't find a quote along those exact lines, but there is something similar in...

Yes, BPS folks really LOVE 'may', and also 'suggests', 'it is assumed', 'it is thought', and other words/phrases along those lines, to make the results suit their own biases/personal beliefs. Science and, y'know, actual evidence, are unnecessary!

It was the Mayo Clinic https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/diagnosis-treatment/drc-20360510 That whole page is just dreadful.

Wow, that's a heckuva patronising and downright potentially dangerous set of personal beliefs on display in that article. I wondered who this person was and a quick google turned this up (apologies if everyone here knows who he is, I hadn't heard of him)...

'Often'? Really? Are they sure they didn't mean 'occasionally' but just spelled it wrong :whistle:? But seriously, can they produce actual evidence (real statistics, not something just made up in their own heads) that this is often the case? Nope, didn't think so...

These quotes, exactly. All the banging on about 'fatigue'/'profound tiredness' from the medical establishment is a red rag to a bull for me. Really wish they would listen to patients and get it right. The only contribution I can make to describing 'fatigue' as applies to ME, is that of quick...

Indeed, I now see by looking at her reference for that claim, reference [28], that it quite laughably is an old Guardian article from 2011 called 'Chronic fatigue syndrome researchers face death threats from militants'! Oh dear. If that's an example of the type of 'research' she does on a...

That's...rather insulting, as well as surprisingly ill-informed. She's seriously saying there have never been any 'negative tension generating' conflicts as regards HIV/AIDS or mental health? I seem to recall there being many back when HIV/AIDS wasn't being taken seriously, and still ongoing...

Yes, my boss was only using it to treat adults who had suffered a traumatic event in adulthood. I guess I can see how it could be problematic for treating childhood traumas, probably a much more sensitive and unpredictable situation. And yes, using it for migraine, skin diseases etc is...

It's disheartening to hear that it can have detrimental effects in PTSD. In the 1990s soon after EMDR was conceived, I worked for an NHS Consultant Clinical Psychologist who was one of the first UK-trained EMDR practitioners (trained personally by the therapy's developer, Francine Shapiro). He...

Very similar here: A consultant I saw years ago for my as-yet-undiagnosed ME wanted me to take antidepressants, and when I told him there was no point in that as I wasn't depressed, his highly scientific reply was "Well, sometimes the body can be depressed even if the mind isn't." Er, say what...

Yikes! That's very unfortunate and indeed something to bear in mind for future such articles! Maybe 'erroneously concluded' or 'concluded on non-robust evidence', something along those lines, so that casual readers only looking at the first para don't get the completely unintended impression...

Ugh, where's a finger-down-the-throat emoji when you need one? A non-scientist media person awarded an honorary science degree for being in with the in-crowd in a little echo chamber where everyone gives each other continual awards and accolades, while not giving a damn about science...

Am unable to access the Huffington Post article, if anyone else has a similar problem this is from UK's ITV News https://www.itv.com/news/2019-09-16/hundreds-of-patients-suffer-due-to-nhs-errors/ Yikes. Am scared to ever let anyone from the NHS near me again, especially with a scalpel. Who...

Judging by his various public pity parties in the media the last few months about horrible 'activists' being mean to him and his work, it looks like there may well not be any depth to which he is unwilling to sink!

LOL! I LOVE that retort! :rofl:

Wow, they lump ME/CFS in with SAD, for some unfathomable reason. Yes, if only ME really was just 'feeling tired and run down most of the time', 'which can be debilitating' (my bold), which implies it might not be debilitating. As well as not being able to grammatise or punctuate properly, they...