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White and his colleagues really come across as textbook examples of Dunning-Kruger. (ETA: https://en.wikipedia.org/wiki/Dunning%E2%80%93Kruger_effect )

Just took the survey - boy, was it bizarre. Consisted only of a series of questionnaires entirely focused on abnormal psychology issues (eg, constant uncontrollable worrying) and nothing relevant to ME/CFS. Very hard to understand what the point of the survey is or how the results would be of...

Don't know if everyone here is aware that Parker was reported to the Advertising Standards Agency in 2012, and their conclusion was: https://www.asa.org.uk/advice-online/health-the-lightning-process.html https://www.asa.org.uk/rulings/Phil-Parker-Group-Ltd-A11-158035.html Parker said in his...

Re the Breakspear Clinic post above, I'll just stick my head above the parapet to say that I'm a patient there and mention my own experiences. I knew the clinic was considered 'woo'-y by skeptics, but I was getting nowhere with the NHS in trying to get diagnosis/treatment for probable Lyme...

Yes, I came across that article yesterday and was enthralled by it, thank you for posting it - a truly amazing story indeed. Lots of stuff we can relate to: he fell ill, got progressively worse/weaker with time, had to give up college, became bedridden, got a fair amount of medical...

I do most of my shopping on Amazon and eBay due to being mostly housebound, and have been donating to Invest In ME Research via Amazon's Smile scheme for the past couple of years. It's not much but every little bit helps. :)

Wow, that's an amazing achievement - well done!

Yes, he's stated it to be 'at the heart of medicine' in various sources, such as here https://www.kingshealthpartners.org/latest/855-new-royal-society-of-medicine-president and here https://www.newscientist.com/article/mg22329850-400-we-need-shrinks-in-hospital-emergency-rooms/ . (ETA: I would...

(My bold.) Funny that. Last year on Twitter he was proclaiming that ME and CFS are two different conditions and that PACE only studied CFS and wasn't about ME. Previously, he had always stated that they are alternate names for one condition. When a few Twitterers supplied him with documentary...

That's the impression I had of him too. Am truly shocked and saddened. Hopefully there will be more of an explanation soon.

Vogt hasn't blocked me (yet), I've never posted to him, but I noticed I had been blocked at some point by CFS_research who he is telling people to follow. CFS_research is one of those super-precious snowflakes who block people just for Liking/Retweeting a post on the topic of ME that he doesn't...

Hee hee, I was just about to post that link but you beat me to it! Hall really doesn't seem to have thought PACE was great at all.

On my PC it plays with no sound at first, but if you mouse over the icon of a speaker with an x next to it and click the x, the sound will then work. It just starts off with the sound disabled for some reason. ETA: Cross-posted with Sasha!

He is not the inventor of CBT but was a junior psychiatrist in the late 1980s who invented an 'unhelpful illness beliefs' theory of ME/CFS as mentioned above by strategist, and decided that CBT would remove those unhelpful beliefs and thus effect a cure. His benefits were fame (he's very...

So did I, back when a group of us here ordered that promotional offer last winter (January 2018). There was no need for it to be ordered from a physician, and as far as I knew from over the years when a couple of friends had mentioned uBiome to me as maybe something I would like to check out...

This, a million times. Thank you for expressing it so well in such a moving interview, @JohnTheJack .

Hey thanks, will look into that!

OMG, that first Google result, Trustpilot: 8% 'Excellent', 88% 'Bad', aaiiieeee. I'm too poor to get a high value card, so no worries there - all I wanted was a card with a few bucks just for the donation to Berkeley. OK am giving up on this for now, my brain hurts, LOL.

My card is a debit card, I don't use a credit card. Might vary with what country you're in or what bank you're with, but my bank account got overdrawn by over a hundred pounds when my debit card got defrauded, not just what was in the account. And I got charged for going overdrawn, although...

I buy frequently on Amazon and that's a different scenario - you don't give your card details out online every time you make a purchase, you give them once when you create your account with them and they store it for future transactions. The only exception is when your card expires and then you...