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Thanks for that! Will see if our local Sainsburys does them. And am so sorry to hear you had to deal with fraudulent card transactions too, it is a total PITA. (In my case it was hundreds of pounds and left me overdrawn, so not going to risk putting myself in that position again!)

I will no longer use cards to pay for anything online after my card got defrauded 3 times within 5 years a few years ago as a result of online card transactions, despite keeping my computer locked down with tons of anti-malware and security stuff and being very careful. I won't ask someone else...

Thank you so much for giving us another year of your wonderful investigative work. Again, I wish Berkeley would take PayPal, as it's the only way I can donate. They could really bring in a lot more from those in the same situation if they can add that option. Pretty please, Berkeley? With...

I suspect that will only happen when pigs learn to fly, hee hee. :D

Seeing this makes me so angry. The exact same thing happened to my husband's mother. She was told for over 3 years that her symptoms were just IBS, it was 'just her age', and to 'go away and stop wasting doctors' time'. By the time someone finally got off their backside and examined her...

I took a look at that link but couldn't find it, not in the thumbnails at the bottom nor even by doing a search. Strange, could it have been removed (she asked hopefully)?

Yes, I was surprised he called himself that in the letter Robert posted above; when I saw him his title was Consultant Physician and Endocrinologist, he specialised in endocrinology and diabetes, and the only tenuous connection with ME was that he ran the local 'fatigue clinic'. Am very...

Yes, I think you're absolutely right about that! Ugh.

Arrghh, I'm unable to like that post because that Dr Colin Johnstone who wrote the first letter is the doctor I saw who told me my devastating bring-you-to-your-knees symptoms could just be me mistaking normal everyday bodily functions for symptoms, as I recounted in my post no. 19 here...

Absolutely right. Having lived in those two countries for many years each, I can say that my takeaway has been that in the US, when those in charge find they've been doing something wrong, they like to take action to fix it and do better, which both puts themselves in a good light and helps...

This, exactly. I worked in a psychiatric unit for several years and the staff were routinely subjected to bad behaviour and sometimes quite scarily threatening behaviour. Someone being mean to someone on the internet doesn't come even close. I suspect that Sharpe, Wessely et al have only...

Yes, this. Thank goodness they are finding it hard to recruit new researchers - and yes, funny how Kelland didn't know about, or chose not to acknowledge, the ever-increasing number of biomedical scientists that have been coming into ME research (at least in the States). Looks like it becomes...

Yes, that's the case - I was on what was called Incapacity Benefit when I got ill, the name of which was later changed to ESA. I wasn't considered eligible for PIP, despite being housebound and for some time bedridden. But, full NI contributions did get credited from out of my Incapacity...

LOL! Didn't quite feel up to being rude enough to tell him that, but it is indeed how I'll always remember him! :emoji_potato: (Well, there's no emoji for poop, that potato will have to do!)

Similar here: An endocrinology consultant who was actually recommended to me as a 'CFS expert' told me that my horrifically disabling, bring-you-to-your-knees symptoms could be just me mistaking everyday bodily functions for symptoms. When he said that, I was so shocked and lost for words that...

Well, as mentioned in the letter from the Countess of Mar on the first page of this thread, he invited her to lunch, which indeed sounds higher up the hierarchy than coffee, as befits a Countess - but, when she arrived he presented her with just a bottle of water and left her to buy her own...

Wow. From that article:

When that consultant said that to me, he told me I could go look up the paper or article in which that claim was made in our medical library, where we had Medline or whatever the primitive computerised journal database was called back then. I read the paper, dismissed it as a load of hooey, and...

Having acquired ME in 1983, I was there in the days when ME was only Ramsay-definitioned and considered a physical illness, not mental. It was accepted as a post-viral state that some people got slapped with after having had one of a number of specific viruses such as Coxsackie, EBV...

Unfortunately I have every one of them plus a few more. Back when I used to go to doctors before I gave up, I narrowed it down to the most pertinent few rather than hit them with my own personal laundry list. But never mind, most/nearly all doctors think it's just 'fatigue' or 'tiredness', no...