Selective use of diagnostic criteria, (including arbitrary modifications to them, thus making the results hard to compare with other studies - see PACE).
Lack of long-term follow-up.
The aim is to identify, understand and quantify people’s symptoms and disabilities.
No in principle problem with this bit, though it is hardly novel or insightful.
It will support goal setting, treatment planning, and monitor changes.
Massive problem with the first two of those. Goal setting...
It's nuts isn't it. The 'reasoning', as with so many claims in this field, seems to basically boil down to the symptom and/or the resultant behavioural changes are the cause the symptom, that the phenomenon is its own cause.
Nobody is suggesting that non-restorative sleep is helping nor that...
Or admit they got nothing useful to offer, at this stage, beyond diagnosis and generic support and medical care.
This is one of those issues where we simply don't have a good handle on it. It is quite possible all cases are infectious onset, but in some cases the initial infection is very...
I almost never went to the doctor in the 20 years before I got sick, and always for routine or obvious stuff like vaccinations, needing 2-3 stitches in my hand and in my head on another occasion, antibiotics every so often for a chest infection from a flu, a sick note once or twice a year (not...
The question being: is the problem with the compensatory mechanism itself, or is it elsewhere in the body which is in turn imposing demands on the compensatory mechanism that are beyond its capacity to counteract?
A work of pure fiction about patients, soaked through with truisms, platitudes, and bigotry.
It describes nothing more than the self-serving excuse-generating fairy tale in the author's head.
Interpreting these symptoms within a biopsychosocial framework may facilitate understanding of the complex nature of the disease and optimize the use of digital technologies for monitoring cognitive dysfunction and supporting patient-centered care in ME/CFS.
That 'may' is doing an awful lot of...
And, equally, an admission if it cannot be provided, including the sense and decency to not further compound the problem with bullshit to avoid having to admit it.
The most important obligation on experts of any kind is to know the limits of their knowledge and stay within them.
Hope springs...
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