Search results

  1. Sean

    inews.co.uk: "At 35, I was bedbound with ME – this is how I got my life back"

    ‘Finally Awakened’ comes out on Amazon on 21 April Because of course she has something to sell. :cautious:
  2. Sean

    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    Selective use of diagnostic criteria, (including arbitrary modifications to them, thus making the results hard to compare with other studies - see PACE). Lack of long-term follow-up.
  3. Sean

    The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

    Well, the identify and quantify bits are okay, the 'understand' bit is worrying.
  4. Sean

    The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

    The aim is to identify, understand and quantify people’s symptoms and disabilities. No in principle problem with this bit, though it is hardly novel or insightful. It will support goal setting, treatment planning, and monitor changes. Massive problem with the first two of those. Goal setting...
  5. Sean

    Why does FND mainly affect women? A consideration of gender imbalance in neuropsychiatric disease, 2026, Bradlow et al

    "Misdiagnoses of FND are rare and the effects are likely minimal" the authors say. :rolleyes:
  6. Sean

    The relationship between nonrestorative sleep and persistent post-acute sequelae of COVID-19: a longitudinal study…, 2026, Hazumi+

    It's nuts isn't it. The 'reasoning', as with so many claims in this field, seems to basically boil down to the symptom and/or the resultant behavioural changes are the cause the symptom, that the phenomenon is its own cause. Nobody is suggesting that non-restorative sleep is helping nor that...
  7. Sean

    Making Invisible Illnesses Visible: Recognizing and Responding to Infection Associated Chronic Conditions 2026 Iskander and Haridopolos

    Or admit they got nothing useful to offer, at this stage, beyond diagnosis and generic support and medical care. This is one of those issues where we simply don't have a good handle on it. It is quite possible all cases are infectious onset, but in some cases the initial infection is very...
  8. Sean

    Increased illness experience preceding chronic fatigue syndrome: a case control study, 1998, Hall et al.

    I almost never went to the doctor in the 20 years before I got sick, and always for routine or obvious stuff like vaccinations, needing 2-3 stitches in my hand and in my head on another occasion, antibiotics every so often for a chest infection from a flu, a sick note once or twice a year (not...
  9. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Welcome to the club! :hug:
  10. Sean

    Postural orthostatic tachycardia syndrome: when dysautonomia misleads: a mechanistic argument for compensatory orthostatic tachycardia, 2026, Chopra

    The question being: is the problem with the compensatory mechanism itself, or is it elsewhere in the body which is in turn imposing demands on the compensatory mechanism that are beyond its capacity to counteract?
  11. Sean

    News from the USA, United States of America

    Speakers include sociologists, historians, anthropologists, Unfortunately with these guys it can cut both ways. They can do good, or harm.
  12. Sean

    Review Systematic review of movement disorders mislabeled as functional: when incongruence misleads 2026 Marín-Medina et al

    That would be because it doesn't contain any. It just doesn't add up. It really is that simple. Yet it thrives. At our expense.
  13. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Social Prescribing - The perfect excuse for medicine and governments to stop investigating and caring.
  14. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    A work of pure fiction about patients, soaked through with truisms, platitudes, and bigotry. It describes nothing more than the self-serving excuse-generating fairy tale in the author's head.
  15. Sean

    Digital Approaches for Managing Brain Fog in ME/CFS: Interventions, Monitoring, and Future Directions, 2026, Araja

    Interpreting these symptoms within a biopsychosocial framework may facilitate understanding of the complex nature of the disease and optimize the use of digital technologies for monitoring cognitive dysfunction and supporting patient-centered care in ME/CFS. That 'may' is doing an awful lot of...
  16. Sean

    Between Doubt and Diagnosis: Patient Experiences of Emotional Harm from Diagnostic Delays, 2026, McCleskey

    And, equally, an admission if it cannot be provided, including the sense and decency to not further compound the problem with bullshit to avoid having to admit it. The most important obligation on experts of any kind is to know the limits of their knowledge and stay within them. Hope springs...
  17. Sean

    United Kingdom: Sussex & Kent ME/CFS Society News

    Members Opinions Welcome* *Conditions apply.
  18. Sean

    Have you experienced being asymptomatic when not in PEM?

    No. Have not had a single symptom-free day since the day I got sick, more than 40 years ago.
  19. Sean

    Crowdfunding for David Tuller during April 2026

    First of two done. :thumbup:
Back
Top Bottom