Search results

SMC's Expert reaction to reanalysis of the PACE trial for chronic fatigue syndrome (CFS) treatments They've had trouble finding people supporting Sharpe and co. Jon Stone's comment is not really over enthusiastic. But still standing by his colleagues (and protecting his own business)...

I don't know if this has previously been posted (sorry if it has) IAPT pathway for people with long-term physical health conditions and medically unexplained symptoms (2018) Full implementation guidance and appendices Helpful resources Short guide The IAPT manual - awaiting publication...

They're not giving up yet... Don't know why they're doing that right now. Could it have something to do with the paper to be released in the next days? (meaning they're freaking out?) http://www.sciencemediacentre.org/cfsme-the-illness-and-the-controversy/ And still the same good old bullshit...

Chronische vermoeidheid deels erkend als chronische ziekte Knoop version of events: https://translate.google.fr/translate?sl=nl&tl=en&js=y&prev=_t&hl=fr&ie=UTF-8&u=https://www.trouw.nl/home/chronische-vermoeidheid-deels-erkend-als-chronische-ziekte~a8ca6a20/&edit-text=...

Press release of Dutch patients association: https://www.steungroep.nl/images/ME_CVS_en_wetenschap/Press%20Release%20Advice%20Dutch%20Health%20Council%20znvdp%2019-03-2018.pdf

If they were to read more than the spin abstract, they could reach this part of the text, written by the PACE authors themselves, admitting null results for their therapies: "There was little evidence of differences in outcomes between the randomised treatment groups at long-term follow-up."...

So, young people cheat with accelerometers, but Crawley doesn't see why they would do so with questionnaires... OK.

I don't know if Holgate is a BPS hardliner, because he says one thing and then the contrary, asks for more biomedical research and then praises Crawley's FITNET trial as "high quality research". Maybe the CMRC will transform into a useful organisation under Ponting's lead. Nonetheless...

ME Association's press release: http://www.meassociation.org.uk/2018/03/me-association-press-release-people-with-m-e-measurably-more-disabled-than-people-with-multiple-sclerosis-16-march-2018/

Will they have time left to do the therapy sessions after answering all these questionnaires???

From what I understand, there was indeed a period when Solve MECFS wasn't OK, but these last years, they've done a pretty good job.

Sorry I added the link... (seems like I keep forgetting links these days:confused:)

http://www.virology.ws/2018/03/14/trial-by-error-the-australian-situation-and-professor-crawleys-new-position/

This thread focuses on the news about Esther Crawley in David Tuller's recent blog. It has been split from this thread which focuses on the information about the Australian situation in David Tuller's recent blog...

This thread focuses the information about the Australian situation in David Tuller's recent blog. It has been split from this thread which focuses on the news about Esther Crawley in David Tuller's recent blog...

AfME have been on PR for a long time and they have never taken advantage of that. As someone else has said before, they acted as usual, tried to interact a little and fled away when questions started to become somewhat challenging. (it's so much easy to be in the safe space of their own FB page...

Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda https://link.springer.com/article/10.1007%2Fs41669-018-0071-6

Wow. If there are no changes in the final report, that is a very very encouraging news. Especially given the number of psychobabblers in the Netherlands. That makes the German guidelines produced not a long time ago look even more stupid and disconnected than before...