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  1. Jonathan Edwards

    Twelve years of unrelenting headache pain, five minutes to a diagnosis, a life changed forever.

    It would not be so surprising if it is the wrong diagnosis. There is nothing in the report that makes me confident that it was. This is, after all, an advert asking for money donations.
  2. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I realise that this is a real problem. I also think that the journal club structure we had thirty years ago in medicine has been degraded in many places. This is where the training should come but very often it may not. Critical thinking is the only point of the exercise. Presenting for the sake...
  3. Jonathan Edwards

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Adrian is making the reasonable point that it might be useful to have specialists who were good at identifying conditions with a range of symptoms that might fall under a variety of specialisms. examples might be Haemochromatosis and Wilson's disease - both abnormalities of metal metabolism that...
  4. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Not sure what branch of health care you are involved in but this should never be the way to do things. The basic principle is that you have to be able to convince yourself that you can see why a study makes sense and is robust. There is nothing more to scientific methodology than common sense...
  5. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    But she does not need to. She has already been vaccinated with a vaccine that prevents her suffering from or transmitting unwanted suggestions 100%.
  6. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Sorry, but this seems to me out of context @Esther12. No competent physician is going to go through the series of ill-informed belief states Garner was obviously engaging in right from his early tweets. We are all taught about the reality of post-viral fatigue and have seen enough patients to...
  7. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It was probably too near the bone. Geoff C said what I was going to say.
  8. Jonathan Edwards

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I see all your points @Robert 1973 I think this is crucial. Research has to be based on a deep clinical familiarity with the problem to be studied. It is likely to be almost a complete waste of time for people to dream up projects in a lab without at least one of the team having seen a hundred...
  9. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Copied post A bunch of single-issue campaigners. The irony is, I sympathise with their issue but I don't agree with *everything* they say. So I am on a hit list. That sounds a bit unconvincing. That isn't why she is on the hit list I think. Has Garner's piece been edited? There seems to be a...
  10. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    Copied post A bunch of single-issue campaigners. The irony is, I sympathise with their issue but I don't agree with *everything* they say. So I am on a hit list. That sounds a bit unconvincing. That isn't why she is on the hit list I think. Has Garner's piece been edited? There seems to be a...
  11. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think I sent in this short comment: Dear Paul, I am sorry but I think this is inexcusably unprofessional. I was going to make some comments but Geoff C makes them well. You mention 'I learnt that our primitive and unconscious defence mechanisms against injury and infection in the brain and...
  12. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I'm not so sure. These people were never going to be a force for progress. I think maybe this time Garner and Greenhalgh have said so many ill-considered things that the absurdity of it all will emerge. I certainly think that there is going to be a lot of dollies thrown out of the Long Covid...
  13. Jonathan Edwards

    Rheumatism and chronic fatigue, the two facets of post-chikungunya disease: the TELECHIK cohort study on Reunion island, 2018, Gérardin et al

    I think the problem here is the same as for looking for a whole lot of other 'persistent antigens'. The only people who seen their time looking are people who are convinced they are there. Maybe they are there, but that still begs the question as to whether it is relevant. Decades ago Ralph...
  14. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    We can sympathise with garner as a person but not as a self-satisfied professional. Let's be straight about this, what he says is the equivalent of saying 'don't listen to all the patients whose cancer has spread and is incurable, they just can't cope, listen to those who got better by stroking...
  15. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I was just thinking that what Garner had been doing right up t the time he had some tablets handed down from Norway was pacing according to the advice of PWME. So should he not use the n=1 to argue that pacing made him better?
  16. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    If I remember rightly Garner did not quote heated responses, he quoted the people who over-egged the 'physical' side with mast cell activation and whatnot. That is what I think needs to be avoided and nobody here is making that mistake. As far as I can see nobody here is saying Garner is evil...
  17. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    As I have said before, it seems that those who make a living out of touting evidence quality assurance are exactly the people who do not understand how to judge evidence. They are there because they have hidden beliefs they want to justify.
  18. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I suspect he will not be flavour of the moth with a lot of others with Long Covid. It could all get quite prickly.
  19. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Garner would very likely have been put in touch with Recovery Norge by Flottorp or one of the others at the Norwegian Health Institute (where Larun is?).
  20. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes, certainly give a well-reasoned response @Trish. I was talking more in the long term view. The BMJ is a lost cause but it is still a platform for comment that might get read.
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