Search results

  1. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    From what I read it looks pretty certain to be related to recovery Norge, it even uses the same phrase - listen to those who have recovered.
  2. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Moderation note: Replying to a post that has since been deleted by the poster Apart from anything this guy is supposed to be a healthcare professional, actin in the interests of others. Where in all of this self-advertising is the consideration of how it all looks to those who looked down the...
  3. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I am not surprised by the way things have evolved and I don't think anyone should be criticised for whatever comments they may have sent to Gardner. It always seemed to me that he had little insight into either his own or other people's problems. He has made it clear that he has no clue about...
  4. Jonathan Edwards

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    They can ask the receptionist in the front hall. If they are pregnant they can see an obstetrician. If they have a swollen joint, a rheumatologist. If they have ME they should at least be offered an interview with someone reasonably familiar with the problem or who can swiftly pass them on to...
  5. Jonathan Edwards

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I am a committed socialist and I grew up in a world where what you say seemed to be true. But since the 1980s I don't think this has been a reality anywhere much. The doctor's job is to improve the health of their customers. The oil company's job is to provide fuel to support well-being in...
  6. Jonathan Edwards

    Rheumatism and chronic fatigue, the two facets of post-chikungunya disease: the TELECHIK cohort study on Reunion island, 2018, Gérardin et al

    That is quite tricky to do. Nobody really nailed it in the days of longitudinal studies (1980-200). Now we have MRI but it might still be difficult to know the sequence of events. It could be nailed by really good methodology but I doubt anyone would fund it. Yes, this is always tricky...
  7. Jonathan Edwards

    Rheumatism and chronic fatigue, the two facets of post-chikungunya disease: the TELECHIK cohort study on Reunion island, 2018, Gérardin et al

    Another thing that may be of interest is that a hundred years ago, before penicillin, rheumatic fever could continue as a chronic process because the organism could not be cleared. A chronic deforming arthritis was recognised - known as Jaccoud's arthritis. Things are complicated because both...
  8. Jonathan Edwards

    Rheumatism and chronic fatigue, the two facets of post-chikungunya disease: the TELECHIK cohort study on Reunion island, 2018, Gérardin et al

    From what I can see these are completely separate diseases, but it is not necessarily easy to see that. Remember that the clinical picture of rheumatoid arthritis is just the end result of chronic small immune complex mediated macrophage activation. Exactly the same appearance occurs in a...
  9. Jonathan Edwards

    Lightning Process - discussion thread

    Mrs Banfield's daughter must be better now for all of a fortnight!
  10. Jonathan Edwards

    EDS, hypermobility, and the link, if any, to ME/CFS

    The reason for dismissing the whole thing of hEDS is that it doesn't actually make any scientific sense - not even any common sense sense, if you look at it hard. Patient advocates are often right but when they are advocating stuff made up by fringe physicians that they think sounds good but is...
  11. Jonathan Edwards

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I have heard of many submitted projects and to be honest I would not have recommended funding the great majority. I don't think money going to PACE would have stopped more money going to other projects. Most of the virus stuff I have seen looked pretty poor quality. But my main point was that...
  12. Jonathan Edwards

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    You cannot blame the MRC for that. The MRC is not designed to 'come up with' anything. It is a source of funds and a mechanism for deciding what to fund. I am not convinced that much that was worth funding ever got turned down to be honest. I am not aware of recent work showing any anomalies...
  13. Jonathan Edwards

    Beyond Bones - relevance of variants of connective tissue (Hypermobility) to Fibromyalgia, ME/CFS - Eccles et al Feb 2020

    It is a bit like Michael Sharpe saying that they changed the definition of recovery to get results more in keeping with what they expected. It would be hard to make more basic errors even if you tried.
  14. Jonathan Edwards

    EDS, hypermobility, and the link, if any, to ME/CFS

    I am not aware of any applications re activity monitoring. The MRC research project came about in a rather strange way. Advisors were asked to indicate which avenues they thought worth pursuing, prior to any application. Having advised that GWAS was the one thing that looked worthwhile and had...
  15. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This might appear to be an inconsistency but I am not sure that it is. If we take ME to be the result of a self-sustaining regulatory failure in a complex servo system such as the immune or nervous systems then it still makes sense. To trigger a self-sustaining problem in theory all you need is...
  16. Jonathan Edwards

    EDS, hypermobility, and the link, if any, to ME/CFS

    Yes, but advocates like Henrik Vogt find LP useful. The whole point of discussing this stuff is sort the reality from the illusion. As I have said many times, I know the people who set this EDS myth in train intimately as departmental colleagues and I know that it is based on nothing other than...
  17. Jonathan Edwards

    EDS, hypermobility, and the link, if any, to ME/CFS

    Why are the justifications nonsensical? The justification is that the toolkit contains a lot of unfounded, misleading and potentially harmful information. The reasons I have written about quite a lot here. Nothing is shrouded in secrecy. A number of paediatricians have publicly pointed out the...
  18. Jonathan Edwards

    Finding your own way to manage patients with functional disorders, Emmanuel, 2021

    Yes, mechanically unknown snags seems the right diagnosis. Moreover, more often than not once it has been washed down it will go into reverse nicely (at least for a week or two) so it clearly is the right treatment. and next time is won't go into reverse you are guaranteed to take it to another...
  19. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It may be that 'severity' for Covid largely relates to pulmonary involvement with hypoxia - which is the main reason for hospital care. That may not correlate closely with the systemic features that Covid and mono share - fever etc.
  20. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    The writer seems to have lost the plot at the end. One can only really sympathise with an attempt to argue through a complex situation if the argument makes sense. It is interesting that he says that: Because of this lack of knowledge, the Medicines and Healthcare products Regulatory Agency...
Back
Top Bottom