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  1. Jonathan Edwards

    Psychological therapies. Discussion thread.

    I think this is one of the major trip up points in the discussion over ME. 'Psychological' and 'psychiatric' are really two completely different things, as Woolie explains. The confusion is made worse by many psychiatry departments deciding to become departments of psychological medicine. A lot...
  2. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    I am not aware of TG being particularly active on the 'right side' beyond what is glaringly obvious to any sensible person - i.e. wearing masks. Anything she has said pales in comparison to Independent SAGE. I agree that it is good to avoid unsubstantiated biomedical claims, although it is...
  3. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    I have a feeling that patients sounding off and being belligerent just now may not be such a bad thing. After all, what is it that TG is saying? She is saying: 'If only all these ME activists stopped being aggressive and unreasonable and recognised that all they need to do is go away and do...
  4. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    These people's thinking is so absurd. Garner is extolling mind-body dualism - the mind interacts with the body. It is there in black and white. And he helped to set up Cochrane it seems. Everything clunks into place. Cochrane always was a phoney outfit. Nobody should be surprised by what is...
  5. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    You just need to be on a forum of activists who re-post all the interesting tweets on it.
  6. Jonathan Edwards

    Muscle biopsy studies

    I think there will always be difficulties in interpreting oxygen uptake figures. I think we need to see a profile of metabolic molecules actually in the tissue during and after exercise and my understanding is that MR spectroscopy has the best chance of doing that.
  7. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    But that is what TG is using; heated and exaggerated language. I don't actually think she holds much power here. I think she is making a complete fool of herself and that will remain evident. I we say that what works is sousing off garbage - like TG - the why not do the same? I quite agree...
  8. Jonathan Edwards

    Keep fit: marginal ideas in contemporary therapeutic exercise, Nicholls et al, 2018

    Rather than drawing on Foucault and Deleuze I would prefer to look at the quality of the evidence.
  9. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    My centrally sensitised ear found it hard to miss. The hollow cowbell sound of hypocrisy.
  10. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    So there is little room for doubt that this is a case of recognised expert bullshit.
  11. Jonathan Edwards

    Can we call ME/CFS a disease?

    I think sometimes there is a bit of a grey area here. Organisations that deal with one illness in this way may be run by health professionals but they are not necessarily representative of the view of the specialty (neurology). I don't know in this case but there are certainly some groups with...
  12. Jonathan Edwards

    Can we call ME/CFS a disease?

    I think there are potential problems with advocacy groups defining medical terms.
  13. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    The level of insensitivity from someone supposed to be in primary care is mind-blowing. TG claims not to understand what the fuss is about - maybe she should have pondered that when she found she had to block thousands of people. Fortunately, this 'chatting among friends' is open for all the...
  14. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    TG's tweets seem to have lost any relation to logic or reality. That last one on very powerful people is completely non sequitur.
  15. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    Now, @dave30th, surely you are forgetting how things go. How did Chalder and Wessely know the best sort of CBT for ME in 1989?
  16. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    To some extent I think this is just UK Tweeticine. But with the piece in the BMJ I think you are right to be alarmed. This all started with Presidents of Royal Colleges becoming celebrity appointments - sort of for B movie stars who had done a lot of films but hadn't quite made it in research...
  17. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    In one way yes, absolutely. Maybe not entirely though. I agree that all the earlier posts were sympathetic but I remember from the start being sceptical that he really understood the implications of what he had latched on to.
  18. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    TG: The testimony of someone who has responded to a particular therapy is not a dismissal of those who had a different experience. Yet again this shows the depth of ignorance about how evidence works. The fact that someone got better doing exercise does NOT mean that they RESPONDED to that...
  19. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    How can you have a Covid recovery resource site if there are no data on what to recommend? Some people seem to have got research very back to front. Not a lot of equipoise.
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