Search results

rant that is going to worsen my health: i think pwme need to be part of the equation. scientists figured out long ago about hiv/aids and vaccines and antiretroviral doses. populations get studied in vaccine development and implementation. m.e. needs to be studied (e.g. by post-vaccination...

i am not in any shape to guarantee responses, but i have written notes for many years, and would be interested in your comments and i will try to make some semblance of sense: 1. believe it or not, i am not convinced that we are at a point where we can make a pathognomon[-ish] that is...

Merged thread Awareness Starts With Us > All horrific acts in the history of humanity have been done by dehumanizing a group of people. note: facebook seems to make the page disappear for those not using facebook / who will never use facebook / who cannot use facebook. in addition, s4me...

Hi @Creekside, can you elaborate on the differences among pem, crashes, and other worsening of symptoms?

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(20)31958-9/fulltext

What are some factors one might consider / look up / ask doctor about for a bedridden-except-bathroom pwme in deciding whether to get a root canal? I have heard that they can maybe increase infections. Or maybe have formaldehyde. Or maybe make a tooth crack. Or some stuff about cavitations...

there are some who still do not know about this report and that is why i logged in to post this post. i do not want this report to go unnoticed or forgotten! wouldn't it be great in every mp and congressman/senator's physical and email mailbox everywhere, with all of the graphics, in color...

the colonoscopy/gastroscopy prep i did in early 2000s made my bowels quiescent for the first time in 20-30 years. it also reduced mold [a bunch of symptoms] / allergy symptoms significantly. it also reduced fatigue significantly. this lasted for a few days. the effect size was large. never...

i did not answer the poll, because i am too conservative to claim significantly for some time consistently, but eating DEFINITELY frequently immediately improves malaise and most likely fatigue in my case. random facts: i eat frequently. [when executive dysfunction does not prevent that.]...

p.s. in my own case i have a long term refractory nasopharyngeal colonization of staph aureus. it was made worse by, and detected by, a nasopharyngeal swab [a kind with hooks]. this paper if it has any relevance to anything might suggest some pwme might have staph someplace. i was also...

idk where to post this, and idk what value it has. it has been claimed in an online comment to be relevant to [1] cytokine storm on https://theconversation.com/coronavirus-why-are-some-people-experiencing-long-term-fatigue-141405 "A number of strains produce pyrogenic toxins which are the...

> Just IMO but I don't feel that the press has 'balanced' those years of gaslighting yet. Time for more and better articles on ME. i agree with @Snowdrop. i don't think allowing the event that pwme are still experiencing to pass quietly into unread and uncurated history will do pwme, today's...

i ran across that also, but i don't know what country it was attached to. this reminds me of one thing i found peculiar in medical texts ca. y2k. for example, "rarely, there will be a runny nose". (or a greek term meaning "runny nose".) what does this mean? i found that it could be...

my blog's software glitched and did not send out the following to my email subscribers. i hope some readers find it useful as a resource and a source of ideas, or pass it along to those who will. https://thekafkapandemic.blogspot.com/2020/02/crimes-against-humanity_3.html ETA: To give this a...

requiring subjects to go to your lab is not ok.

Yes, @Invisible Woman, I know.

good points. there are also those who need assistance with day to day life but cannot contribute as much as anyone else EVEN IF they are allowed to do it a bit differently. because their disease population is persecuted to the point of no science. and because they get sicker because they...

i have never found webinars possible to attend. it is not within my health capacity. signing up, being organized, not having emergencies, being awake, not being too sick, dealing with technical issues, and many more things make it completely impossible. so webinars don't do it for me. if it...

let's switch that around. one desperate need in the m.e. population is knowing the effect of covid on existing pwme. e.g. susceptibility to covid, course of covid, worsening of m.e. recovery time, effect on and of m.e. comorbidities. sleep. they should have pwme and controls willing to...

tl;dr: this is a familiar danger sign. the hazard to society message is not thickly veiled. i only pick this article because it is there. i could have picked nearly anything. thousands of articles. it is normal to laugh at moronicity, but i think it is also needed to see it as an attack...