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it's great to get a report on both pine, to whom i am grateful, and the omf. as for qmul, there are quite a lot of observers of academia and government. why is not an enormous chorus saying qmul is [1] performing morally wrong actions and [2] violating its obligation as a university? even the...

that spot you marked: it is precisely one of my bad spots. one side. it feels like the source of much, including coathanger and ulnar nerve issues. worsened by typing etc. is that near the place on the spine above is c# and below is t#? i have a bulge there. one doctor told me it was...

permit me a bizarre, over the top brainstorm. could it be that in some cases it is "the problem is that people are saying they are sick. we will train them not to do that. what's the fuss?"? thus at root not a denial of disease [ontology] or credibility [epistemic worth]. those are...

thank you for the subtitles. my fogged review: vascular. could account for multisystemness. metabolism also. much bigger study than naviaux. men and women different as we knew. autoimmune not certain if only at one stage or at all stages. [or similar. seemed to say m.e. is autoimmune.]...

their reputation is their risk. a blog post on their ... sloppiness would get many readers. add to the already /enormously/ scandalous conflicts of interest. write a few pieces here and there in the science reform community -- even blogs are fine -- and cochrane's reputation can in principle...

ok. but seems to me there are occasionally global connections. and seemed like a few things [perhaps mostly in the uk] came out on one day last month. could be just coincidence.

really wish the mea would loudly exit cmrc. it horrified me to learn that they were sending medical students there. these people are sort of relying on the idea that "some" charities are intransigent little impudent scoundrels who for no reason oppose saintly logical scientific efforts. if...

they frequently accuse us of doing to them the exact thing that they do to us. i don't know for certain why bad guys use that tactic. the only accurate term i know is "no, that would be you". but i want a formal name for it. more accurate than tu quoque or projection.

i am collecting a list of diseases in which it is possible for an individual to have more symptoms than most pwme. what diseases are known to be /highly/ polysymptomatic? for example, some descriptions of m.e. [iirc stanford or omf] mention 60 or so. what diseases can have that many or more...

i hope this is not redundant, but given these things, and various things like orthostatic intolerance, looming, and poor sleep [produces identical symptoms in my case], are we still going to use the word exertion? it's possible the many misperceptions could be reinforced by focusing only on...

didn't see this posted. https://www.cfs-me-network.com/2017/09/13/interview-nancy-klimas-cfs/ m.e. science, politics, and osler's web. tom kindlon posted it on a mailing list.

sounds good to me. eta: on reflection it's insufficent, as there are some who pose as skeptics but do not care about being good skeptics -- they have an axe to grind.

the term is used in different senses. philosophers might have a more narrow and agreed-upon definition. [which is kinda funny since we're talking about philosophers.] one common sense of the term is closely allied to the behavior of many pseudoskeptics, who excessively defer to science as an...

@esther good idea, but no cigar in this case. in order for the document not to seem patronizing, and a diversion of precious resources from more critical endeavors [please see my first post in this thread which is more analytical and addresses the supporters], and really depressing wrt the...

this is REALLY depressing. i realize that from the perspective of where we were a few years ago, we are making more progress than ever. i realize that movements enter a period where everything seems fruitless, and often that period is where a massive effort can produce victory. but i look at...

i think "activity management" can in practice be a dangerous distraction from discovering fundamental pathophysiology, clinically useful biomarkers, epidemiology [and characterization of the whole disease not just those who attend specific clinics], causation, and treatment. i'm concerned the...

missed this offer by a hair. the website said it was still going. but they sent mail saying they were not sending out more tests for a while or something. quite upset at missing it, as i have a nasopharyngeal staph infection and botched cauterization that would produce potentially useful...

good question. i also wonder at "exertion". it's also exposure. to light noise stress etc. and bad sleep can produce the same effects. do we have evidence that this should be limited to exertion?

thank you for taking the time. i think i understand a little better. but that last sentence ... i want a small number of answers to explain most of them. i'm not sure if your post addresses the symptom profile i am talking about. > The problem lies in the nature of the way we have to...

does broadly mean we kind of take a gestalt? or am i too fogged to be using a computer? it could partly be severity-related? it seems possible that an almost asymptomatic or very mild sufferer [e.g. able to work and get to doctors but no ability to socialize or cook more than a bowl of...