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I’m not good at keeping track of exact words, or records of ins & outs. However, I felt the patient position was being heard and generally being well supported. Sorry for being vague. It all seems quite a while ago now, and I’m not keen to say more. The point I wanted to make was that there was...

Sadly I am not entirely sure, though others maybe more on the ball than me. While there was good communication during the time I was involved (I was a substitute into the process part way through), the lines of communication seemed to evaporate once our part was completed.

Moved posts I was on one of the working groups for the delivery plan. Most of what I saw near the end of the process was really good. (With the understanding that there are always going to be some things I’d prefer worded another way). So I wonder if the problem is not the process by which...

I have a couple of sets. The cheaper Quiets for sleeping, and then another pair. I can’t remember what they are called, but they came with the extra insert that deadens noise more. I like the ease with which I can take one out when I need to chat more easily. And they are so easy to put back in...

Sorry - you are right. It wouldn’t work out. It just seems such an anomaly that people can be judged as unfit for any benefits (ie fit to work) at the same time as having such a poor quality of life that they are seriously considering a way out. I don’t know what the answer should be.

Though requesting assisted dying due to lack of funds and poor quality of life, should surely mean re-assessment of funding sources??

I said a lot in the first free response space, and then rather dried up, having put all my things in there without reading ahead first :facepalm:!!

That would certainly be worth the testing, but it doesn’t change the concept some tests may not be. Eg Unpleasant tests/procedures on one weak eye, when the other is still functioning well.

And yet, when an individual has become very frail (and perhaps increasingly so in recent months) is it really fair to put them through the stress of the transport, the waiting, the testing, and the travel back? Some tests just may not be worth that amount of physical distress they can cause...

So my understanding of myoglobin was that it is a molecule within muscle tissue that acts as an oxygen store, releasing oxygen when muscles work, and delivering oxygen to muscle mitochondria before diffusion rates from blood haemoglobin catch up with demand? Is it also a transport molecule...

I’m going to need to read this again more slowly and carefully. :bookworm:

It seems this roughly translates as: Go away, we have put your complaint in a long-term holding tray. We will not apologise for the delays thus far, nor will we apologise for those that we anticipate in the future. PS Generally nothing is expected to leave our LTH tray, so really you should...

That’s an excellent article indeed.

Maybe a better phrase would be “doing better”? I think overall I am currently “doing better” than over the winter. Yet I’m not necessarily “feeling better” as I tend to run at a certain “feeling okayish” level and adjust how much I DO to not “feel worse”. Likewise any “feeling better” I...

This might all need a new thread, but let me throw a couple of thoughts into the mix. Firstly, as I see it there are two very different barriers to exertion: 1. In the moment Fatiguability. This is similar to a proper exhaustion, in that it feels like the body can literally do no more. An...

You’d think even a normal hoist could be used. Patient could surely be lifted just for a moment to get a weight, and that could be done at a point where the hoist was being used for another purpose anyway? The excuse of being unable to weigh Maeve because she couldn’t stand, seems particularly...

Heart rate goes up after a meal to cope with the extra energy demands. This energy demand of eating and digesting should not be a difficult concept.

Though they could surely still sue if the decision was made by others through sectioning? Or is that easier to defend in court?

Why would they need the added indignity of the sectioning if they agree, and the consultants would still be delivering the same treatment after the sectioning? In the severe ME patient’s situation sectioning is understandably a terrifying prospect. Thus the requiring of sectioning to access...

Thank you @Nightsong I appreciate this. Dr Weir making good points.