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https://mail.google.com/mail/u/0/?tab=wm#inbox/FMfcgxwDsFXrqrKLhBTgxngxXbsWFLSG Powassen Virus - Are they sure in UK? Maybe the "typical" Lyme encephalytis found in mainland Europe vs PV?

Cats, dogs, all kinds of carriers. Bartonella is one of the weird ones. It manifests it many different ways. It is easy to mistake for another disease. I was fortunate on a couple of fronts: I had a common manifestation - bad pain in the soles of my feet. Plus, I carried one of the few strains...

Oh, good. So the video is NOT about ME/CFS with a title that just says Chronic Fatigue. Cool.

Er, is that really the title of the talk? If it is, eh, it may or may not be relevant to us. So why care? I'm not watching it. Why? Because it seems to me lazy IF it applies to ME/CFS and not just a single symptom, and IF it applies, that potential sloppiness hurts.

Not to digress, but I seem to recall reading somewhere that the number one cause of disability in vets is Bartonella. Can't be sure since I don't recall where I saw it, though.

It should have been before 1969, but I would not bet the ranch on that.

Maybe they got behind the Eight-Ball?

:laugh:

Not surprising Baraniuk oversaw this given his historical overlapping emphasis. I kind of like that he doesn't hold back when he labels ME/CFS and GWS "diseases of the brain." He joins Natelson in this regard, if I recall correctly. I personally would have preferred if he opined "diseases that...

We do not know the pathology of Alzheimer's. We know some of the signs, but nothing is universal except dementia. I do not need to bend words. But others will bend ours if we leave open the door, I fear.

I would suggest we have not definitively established the pathology for Alzheimer's or MS. In addition, this leaves some gaping holes. For instance, is a gambling addiction then not a disease? Are channelopathies without genetic markers not considered diseases? I can go on. If we leave an...

@Barry, "medical condition" or even "underlying condition" would include deconditioning and strained muscles and hang nails. Also, it seems like we are avoiding calling a spade a spade due to political sensitivity - and to a certain extent, medical ambiguity at least in terms of causation. I...

@Peter Trewhitt , I like most of what you have suggested just above, but I'm a bit concerned at the tendency to write "medical condition" or "underlying condition" instead of disease. I'm not sure you say disease even once. Perhaps this is deliberate, but if so, I'd advise you rethink that.

A gent. :) Willy B seemed to enjoy word play as well. It was tempting to write off some of his "wording" to Parkinson's, but I don't know.

Barbour and Benach's title, @Alvin , but I strongly suspect they are playing on the Willy Burgdorfer double entendre of Swiss Agent, which he used to advance the concept of a rogue rickettsial pathogen, derived from a Swiss Rickettsia species, as the cause of Lyme, while he, by some accounts...

@chrisb, if one were to take the time to make a dot every time there has been something completely new unearthed in the Bb saga, or another inconsistency surface, or a bizarre coincidence....and then try to connect all those dots into a line, that line likely would stretch...well, we're not...

Sorry. Nothing more than the old down and dirty rule of thumb for just about everything , ie, theory really only applies to 80% of people, or only 80% of people will respond. Pretty good maxim in marketing, so figure human nature variables. Not at all scientific.

Yep, I'm hypothyroidal. I also have Vit D deficiency. I also have a folate defciency. And as you rightfully point out, the entire range thing is an unfolding debacle for those that fall outside the 80-20 rule. Look at our body temps - for many with ME/CFS that is - we are often well below...

How is this any different than someone with low Vit D values eating Vit D supplements to leverage their values? I'm not really sure taking the supplement (B12 or Vit D) matters the way some might hope or theorize, but perhaps more importantly, I would look at both deficiencies as possible...

Yes, test the tissue, not the blood. Bb has a tropism for tissue. It does not like blood. Many case studies over the years which demonstrate Bb in tissue - cardiac tissue, brain tissue, etc. But still indirect methods prevail. One of the reasons is that many of these tissue samplings are...