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    Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses and Medical Uncertainty, 2019, Bransfield, Friedman

    Friedman you all know. Bransfield is a former President of ILADS, so he is fairly prominent in the Lyme community, at least on the psych side. He is sort of like B Fallon of Columbia U -also a psych - in that regard.
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    SPECT scans: can they be used to diagnose ME/CFS?

    SPECT scans can be used to demonstrate blood flow in organs, including the brain. It brings to bear 3D imaging of organs functioning. It has been used diagnostically back in 90's but fell out of favor - why, I'm not sure. I think it should be used at least complementary. Personally, I think the...
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    Typical Lyme Story, Atypical Victim

    I am not having a particularly good brain day, so forgive me if I am wrong, but I want to say that researchers somewhere in Europe tied the rash into what eventually was labeled Lyme many years before. Many years. I'm not talking about ACA either, I'm talking EM. I could be misremembering...
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    Typical Lyme Story, Atypical Victim

    When you say ECM you are talking about Erythema Migrans rash, yes, @chrisb ? !983 was a watershed year for Lyme papers, and not in a good way. So, numbers for the bulls-eye rash are all over the place. It was considered so prevalent and specific to Lyme that to this day the mere appearance of...
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    Brain inflammation

    Lot of empty vessels out there. A lot. As far as I can tell, they float just fine. But hey, I know all too well what passes as opinion - or even dogma - in some areas can be crap, so I hear your concerns.
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    Brain inflammation

    Interesting location. (@chrisb) I think often times when it comes to brain inflammation people conflate the appearances of acute brain inflammation, like in encephalitis, with brain inflammation in chronic conditions which I suspect is less overt. I think this holds true with many commonly...
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    Brain inflammation

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3887148/ https://parkinsonsnewstoday.com/2019/03/11/parkinsons-study-new-repurposed-therapies-brain-inflammation/ I can keep posting additional links if you wish.
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    Functional Cognitive Disorder: Diagnostic Challenges and Future Directions, 2019, Pennington et al

    They don't have the tools to measure our cognitive difficulties. There is something frightening when a group of people have the ability to take patients' reality and fictionalize it simply because they cannot accurately measure or identify it. I pity these people if comprehensive post-mortem...
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    Brain inflammation

    Diseases like Alzheimer's and Parkinson's are now considered inflammatory diseases of the brain. I suspect eventually so too will ME/CFS
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    SMC: Advice for Researchers Experiencing Harassment

    Functional harassment.
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    Anyone Treating the Eight Herpes Viruses with Antivirals?

    @pone , I would be interested in pursuing this cortex atrophy possibility a little further. Do you have any references you can provide a link to? If so, many thanks in advance.
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    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    Ma Belle Amie. It was a one-hit wonder kind of thing in the late 60's, maybe early 70's. MCI likely is why I could not figure out that this tune would be way to old for most members to know. :)
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    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    My Bella ME! You were a child of the sun And the sky and the deep blue sea. Good luck getting that tune out of your head. :)
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    Anyone Treating the Eight Herpes Viruses with Antivirals?

    I don't know that. I don't remember the specifics of every study of theirs I read. But I suspect it since I do seem to recall Lipkin admonishing ME/CFS researchers not to look at tissue, or something to that end. With my memory, maybe I am misremembering, but it was striking at the time, so I...
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    Anyone Treating the Eight Herpes Viruses with Antivirals?

    Bet they were looking in the wrong places.
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    NIH: New Grants Explore Benefits of Music on Health

    My understanding is the NIH is channeling $3 Billion into its new Interdisciplinary Hedonism Division. It has high hopes it will cure pretty much everything, but if it doesn't, it will be fun having tried.
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    Neuro appointment soon.... Avoiding an FND diagnosis

    I have come to realize many doctors are entitled pricks who resent the oafish patients they must endure and tend to, resent the reduced pay they are forced to accept, scream against the Fates that stole their promised luxuries, find too little solace in drinking too much too frequently, and...
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    Typical Lyme Story, Atypical Victim

    LOL. Rheumatologists and infectious diseases are not necessarily a marriage made in Heaven. Perhaps more to the point, was a govt EIS rep the right type to be investigating what might have been a govt-made fire?
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    Typical Lyme Story, Atypical Victim

    This was organized and conducted over at least two decades. DOD would have vested interests. There'd be cross-elastic benefits from participation to varying degrees, I'd wager, among multiple agencies. So my guess is there are some who have inherited this knowledge, and who continue to manage...
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