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We're surrounded by feckless grifters in white coats

Deconditioning strikes after 5 years? This will really surprise my cardio who thought it could set in after a week on the couch with covid. I guess deconditioning is just whatever they want it to be. Honestly though this is really fucking dreadful. The promise of this study has been one of the...

Can anyone quote this thread for those of us not on the dreaded X/twitter

When I was mild I took ibuprofen almost daily to function, although that was when I already felt flu-ish.

I'm so sick of false hope, when will something pan out for us?

I am genuinely surprised yes. I've been following ME research closely for 3 years and I'm genuinely surprised. And gutted. Maybe it'll still be something of note but I doubt it now.

Oh Lord, if that really is true after all this time and all of this hope they've built up... Prusty eat your heart out! No honestly this is absolutely dreadful if true. And the no pre prints thing seems ludicrous now either way.

After seeing the disappointed responses online, I think it's still unwise to be hyping up a simple clinical trial like this when Ron Davis is portrayed as perpetually being on the verge of a significant breakthrough with his theory/drug candidates. I watched his is ME/CFS curable talk the other...

I was ready to curse the omfs name if they were indulging in a Prustyestque overhyping but this is genuinely good news! We've needed this sort of trial of both drugs for a long time.

I will DM you at some point then. Hope you feel better soon

You're welcome to message me with your experience if you'd rather.

I have looked into this drug and it's supposed to slow the effects of ALS not reverse it. Would it be doing similar here, i.e preventing deterioration, or would it be aiming to improve patients functioning?

Thank you. I apologise for derailing the conversation here. I have been in poor mental health, and should have heeded the trigger warning.

Thanks everybody!

I just struggle to accept that I asked for help so many times and was convinced I was physically ill in spite of them, and then my GP gaslit me and was convinced that I was depressed etc just once and excercised and now my life is destroyed forever and my partners (same infectious trigger...

Do you all really believe there is no hope of a treatment? That Scheibenbogen and other European researcher's will turn up nothing in their trials? What makes you all so sure that current trials for LC will not work for mecfs if they find a successful treatment. I can't face a lifetime of...

Hey all My cardiologist (Dr Gall) is talking about referring me to one or more of these specialists. Has anyone seen them and were they helpful? I'm severe if that makes a difference. I'm particularly interested in the endocrinologists because I have a history of head injuries and never ruled...

Running utterly destabilised my mild ME and I never recovered. Seeing stuff like this is so worrying.

Is this the sort of thing that could be tested for easily? Has it been ruled out for most pwME?

I believed in it, though I didn't think it applied to me for a long time despite what some docs had said. Then I became convinced I might be suffering from it. I tested the hypothesis and destroyed my life. After learning on here and elsewhere about the flimsy evidence for these conditions I...