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    Long Covid in the media and social media 2022

    https://www.theatlantic.com/ideas/archive/2022/10/long-post-covid-symptoms-mild-cases/670469/ The Atlantic hedging it's bets after the brilliant Ed Yong article from the other day...
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    Can exercise attenuate the negative effects of long COVID syndrome on brain health? 2022 Teo and Goodwill

    Yes I worry about that. I could not tell the difference when mild and undiagnosed and jogged/worked myself into a moderate and largely housebound state, which declined to severe after Covid months later. I had had ME for over three years at that point so it concerns me when pwLC think they can...
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    Closed UK: DecodeME updates, was recruitment thread.

    I completed the study today and wasn't chosen to take part. It is quite disappointing on an emotional level even if intellectually I entirely agree with all that's been said. I guess it's just a consequence of years of uncertainty and gaslighting by docs. But other than that I am hopeful about...
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    Closed UK: DecodeME updates, was recruitment thread.

    Slow brain day here too!
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    Closed UK: DecodeME updates, was recruitment thread.

    Just to clarify I absolutely encourage everyone to take part, in case that wasn't clear.
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    Closed UK: DecodeME updates, was recruitment thread.

    My only concern is that by excluding people with common co morbidities (if that is indeed what is occuring), is there not a chance that Decode will end up not studying a significant cohort of ME patients and therefore exclude them from future biomarkers/treatments?
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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    About bloody time!
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    Falling down the biological rabbit hole: Epstein-Barr virus, biography, and multiple sclerosis, 2022, Ralph I. Horwitz et al

    Folk psychology becoming increasingly more deranged...
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    JK Rowling new book — chronic illness references

    I agree with a lot of what you're saying here, but just to clarify I meant that we as ME patients might do better to counter the 'whiny negative attitude' narrative and use it to raise awareness of how awful ME can be, as opposed to getting sucked into the argument around this other character...
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    JK Rowling new book — chronic illness references

    I wonder if this might not be approached as a teachable moment in regards to why people with ME tend to have a more bleak outlook than suffers of MS or amputees or what have you. Maybe explaining how ME takes away the ability to do basic things/hobbies, see family and friends and the low...
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    The Guardian: I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    I found this article a little upsetting, as someone who had a similar quality of life to Khan Harris for nearly four years. I then became bedbound after being convinced my fatigue was partly psychological and trying to exercise my way out of it, then catching Covid a couple of months later. I...
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    The Expectation Effect - David Robson BBC

    https://www.bbc.co.uk/programmes/articles/3gxJbg6f1FDv4tzrbtfp1Y3/how-your-expectations-can-transform-your-life Steam came out of my ears when I read this. Literally magical thinking, as far as I can tell.
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    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Unfortunately I think it was a closed conference (researchers only). I really want to know what he said (if anything)!
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    Long Covid in the media and social media 2022

    This happened to me after worsening to severe following Covid. Cardio recommended intense physio... The rehab team called me and said no way are we putting someone with LC through this.
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