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  1. M

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Beat me to it. Leaving shapeshifting on one side, today is a good day.
  2. M

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    I'm guessing you're not on a smartphone, Trish, because you can enlarge the image while still in twitter. On a laptop etc, select the tweet, then save the pic to your computer. It's ctrl+click then Save image on this Android Chromebook, or r.click then Save on different platforms. Then enlarge...
  3. M

    Prediction of Discontinuation of Structured Exercise Programme in Chronic Fatigue Syndrome Patients, Kujawski, Newton, Hodges et al, 2020

    @alex3619 @chrisb PACE deviated from the protocol to make it harder to report adverse events at the same time as making it easier to claim success. It's a few years since I looked, but I think that an AE had to last across two follow-ups which could be several months apart. Then two unblinded...
  4. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The BBC story that triggered the tweet says: "We've got no doubt long Covid exists," Prof David Strain, from the University of Exeter, who is already seeing long-Covid patients at his Chronic Fatigue Syndrome clinic, told the BBC.
  5. M

    The biology of coronavirus COVID-19 - including research and treatments

    Moved post Covid: Antibodies 'fall rapidly after infection' "Immunity is waning quite rapidly, we're only three months after our first [round of tests] and we're already showing a 26% decline in antibodies," said Prof Helen Ward, one of the researchers...
  6. M

    Does the new ME/CFS research of BPS proponents affect anything much now?

    EDIT The guidelines prohibit or advise against miscellaneous behavioural approaches as well as drugs, so no reason why that shouldn't be extended to GET and coercive CBT, for instance. https://www.nice.org.uk/guidance/cg53/chapter/1-Guidance#general-management-strategies-after-diagnosis 1.4.6...
  7. M

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    When ME comes out of Cochrane's mental health straitjacket, propose a review that excludes obsolete criteria, such as Oxford, and looks primarily at objective outcomes. A quick job, I imagine.
  8. M

    What research do you want to see? (study ideas)

    Maybe something for the PSP to make a case for. There would be several strands - in vitro, in vivo, clinical etc. Mapping where early research has foundered or moved to the next level would definitely be useful.
  9. M

    What research do you want to see? (study ideas)

    Agreed, a scoping review of the thousands of studies ought to identify at least a few that deserve replication.
  10. M

    BPS attempts at psychologizing Long Covid

    "Mental health of coronavirus sufferers is being ignored, Royal College of Psychiatrists warns" https://www.independent.co.uk/news/health/coronavirus-mental-health-royal-college-psychiatrists-adrian-james-b1253895.html I hope this is not off-topic as it's apparently not psychologizing longcovid...
  11. M

    The critical attitude in medicine: the need for a new ethics, 1983, McIntyre & Popper

    Saw that on Twitter and couldn't get my head round it. Turns out the quote is not by Popper & McIntyre. It's by the authors of the chapter on food intolerance in Byron Hyde's Clinical & scientific basis of ME.
  12. M

    BMC family practice integrated GP care for patients with persistent physical symptoms, 2020, Chalder et al

    Like the free market academics economists whose theories never cut it outside the university. https://www.nytimes.com/2019/08/24/opinion/sunday/economics-milton-friedman.html
  13. M

    U.K. National Institute of Health Research review - Living with COVID-19, Part 1 Oct. 2020, Part 2 March 2021

    This post and others on this thread were moved from possibility of ME or PVFS after Covid-19, long Covid https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19-long-covid.14074/page-114#post-295527 NIHR review: Living with Covid19 Published on 15 October 2020 doi...
  14. M

    Post-Polio Syndrome: More than just a lower motor neuron disease (2019)

    BPS PPS cropped up the other day https://www.s4me.info/threads/bmc-family-practice-integrated-gp-care-for-patients-with-persistent-physical-symptoms-2020-chalder-et-al.17195 I'm not sure the BPS cult would dare to acquire post-polio itself, but yes it would be good to challenge them as to why...
  15. M

    Post-Polio Syndrome: More than just a lower motor neuron disease (2019)

    PPS - persistent physical symptoms - is also the BPS flavour of the month term for somatoform disorders...
  16. M

    “Lumping” and “splitting” medically unexplained symptoms: is there a role for a transdiagnostic approach? - Chalder/Willis (2017)

    Wessely and White had a gentlemanly "debate" on this in 2004. https://www.researchgate.net/publication/8424117_There_is_only_one_functional_somatic_syndrome It's their sacred cow, sorry, mandala.
  17. M

    BPS attempts at psychologizing Long Covid

    https://en.wikipedia.org/wiki/William_Sargant "His ambition to be a physician was thwarted by a disastrous piece of research and a nervous breakdown, after which he turned his attention to psychiatry." Says it all, really.
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