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I guess big part of the problem with this treatment comes from the denial of side effects. Just like with antidepressants and withdrawal, which was dismissed for a long time, but is finally gaining recognition, the promotion of ECT as this magical tool without any major side effects reminds me...

Should be interesting: Motion ‘This house believes that electro-convulsive therapy (ECT) has no place in modern medicine.’

And here we have another one...

Not necesarily. Going up to anaerobic threshold may be enough, because as others have mentioned that's where the biggest difference is between pwme and controls.

Yea, I pointed him to this virology blog.

Sharpe strikes again...

https://www.sciencedirect.com/science/article/pii/S0306987718306765 PDF: sci-hub.tw/10.1016/j.mehy.2018.09.023

Open access: https://www.nature.com/articles/s41398-018-0240-5

I could swear that I read somewhere that autoantibodies have to be somehow activated or actually primed to do damage only when the certain conditions are met, like if some kind of immune cells get activated? I could be talking complete nonsense though... so sorry for that, but I just thought...

It seems like the right wqy to go, but I sometimes wonder if subtyping is at all possible at this point? From what I've read here on forums, it seems like every patient is quite unique, even though there are many overlapping symptoms.

I agree, Trish, but seems like Frank has some strong opinions:

Well that's interesting! Especially given that my problems actually were triggered by probiotics.. I thought the thinking was that probiotics don't colonisd the gut, but just pass through. Hmm.. It makes sense. It is known that fecal microbiota is just part of the whole picture. Unless they're...

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But isn't that a bit problematic? From recent https://www.frontiersin.org/articles/10.3389/fped.2018.00242/full That's why I'm a bit hesitant to undergo this test, because if I get a 10% reduction on day 2 someone can always dismiss it as non significant..

It's a really nice overview, especially to hand to someone who doesn't know much about it, although I'm a bit disappointed that they didn't include a table or graph which would summasire the changes that are most common in all studies and most specific for ME/CFS and how big those changes can...

Article has been published. PDF here

:thumbup:

There was some research into EV in ME/CFS and there seems to be ongoing research into this so I thought this may be interesting: https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-018-1275-5#Abstract

Maybe you're right. I mean there are rational explanations how that may work without resorting to deconditioning/false beliefs psychobabble. Simply letting yourself be relaxed and have hope may reduce stress levels quite a bit, especially for someone who previously was depressed and stressed...

IMO, PACE style CBT/GET benefits no one. The only positive thing that could come out of it is what Wessely mentioned in the interview. Patients want to be believed and something that doesn't seem 'too stupid'. In other words, they want understanding and hope. I even think that things like Gupta...