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Does anyone know when/if Ron's team is going to look for RNA viruses?

They key here is that "The cause of PTLDS is not known." Whereas some doctors are diagnosing "chronic Lyme"(meaning infection is still present) and pumping ridiculous ammounts of antibiotics, etc. They're usually not diagnosing PTLD. It may be true that some residual borrelia are left in the...

For some? In other words, you're saying that for most people increase in activity is possible. Isn't it the same GET paradigm in disguise?

I think not. Source

Btw, manuscript is available here: https://sci-hub.tw/10.3389/fped.2018.00242

Can you share how your results changed between day 1 and 2? VO2, AT(anaerobic threshold)?

AFAIK, 2-day cpet show that on day 1 most patients have a normal function. Of course, that doesn't include more severe patients who can't undergo cpet, who would be deconditioned. So the patients with less sever ME/CFS aren't even deconditioned at all! I think it's important to say that. Re...

Some of you may have heard about Dr. Pimentel. He's done some great things for IBS sufferers and is a good example of a doctor who cares. Link to the interview It's worth a read. Basically he's saying that physicians are about 10-20 years behind the current research.. Very similar problems to...

And btw, I'm not against ECT, but the thought of someone potentially trying to use it on people with somatization/somatoform disorders is a bit frightening.

Twitter is buzzing for the past few days about ECT. Apparently this guy has announced the debate and not everyone's happy about it. Open tweets to see the discussion.. Some negative experiences: Seems like the biggest issue is not the ECT in itself, but the possibility of it being used...

Maybe you could also add vertigo (not usual ME or POTS dizziness)?

Not sure why you're so convinced that it isn't. I think it's very likely that depression is a mixed bag of everything. Maybe some have inflammation, some trauma, some had unfortunate life circumstances, etc. All in different proportions in every patient. I think it's actually the opposite...

Which is? Imagine trying to explain that to someone in a catatonic state.

Parasitic Illness From a Bug That Bites People at Night Is Spreading Worldwide, Doctors Warn https://www.sciencealert.com/chagas-disease-parasite-spreading-and-causing-heart-problems-us-europe Doesn't seem like there are any similarities to ME, but it does persist without symptoms (or so we...

Coyne has a few blogs about ECT if anyone's interested: https://jcoynester.wordpress.com/2017/04/19/why-dont-you-just-do-an-rct-to-prove-that-the-electroconvulsive-therapy-works/ https://jcoynester.wordpress.com/2017/05/04/electroconvulsive-therapy-a-crude-controversial-out-of-favor-treatment/

You watch this presentation and then think about all the nonsense that UK psychiatrists are hypothesizing about ME/CFS... Oh my. Why is psychiatry stuck in the 19th century?

I think it also has one of the highest IBD rates.

"This hypothesis suggests that belief in a just world can be understood as a positive illusion.[49]" At least the article mentions that it's an illusion. What if we take a leap and imagine that all people stopped believing in this illusion? How would that affect people with chronic illness...

Same in Lithuania. You either end up with no diagnosis or if you continue pushing, you'll find yourself with a psychiatric label, like I have. I assume the same applies to all eastern and probably most central Europe.