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  1. Skycloud

    "Time for Unrest": ME article by Nathalie Wright

    @Nathalie Wright I'd just like to add that your article is just what I need to pass on to other people. It's the most comprehensive, detailed but very readable, referenced article in a sensible newspaper that I've seen; that people (non sciencey healthies outside my family) might take on...
  2. Skycloud

    "Time for Unrest": ME article by Nathalie Wright

    Exceptional article - well done and thank you @Nathalie Wright!
  3. Skycloud

    Who is Simon Wessely?

    I would like to see the harm they do highlighted.
  4. Skycloud

    Jen Brea comments on Esther Crawley's behaviour

    I broadly agree with @Jonathan Edwards. I understand the feeling of needing to do something about EC, but she's done herself no favours. The SMILE trial is a gift. This thread went off at a tangent. Jen's tweets are great - she's a smart woman.
  5. Skycloud

    Jen Brea comments on Esther Crawley's behaviour

    She is a danger to children, and the current case is deeply worrying. I still think EC is best countered by adressing her 'science' on which she basis her treatment in her clinic. Parents, understandably, are afraid to come forward publicly against her while their child is still vulnerable.
  6. Skycloud

    Jen Brea comments on Esther Crawley's behaviour

    I think we are best served by concentrating on her science first. Disseminating truth about clear provable factual errors and lies such as the mocked up Sunday Times email comes second. She absolutely doesn't speak for me, but I'm not really interested in an open letter or petition to say...
  7. Skycloud

    News Article: Court orders Atos to pay disabled woman £5,000 over dishonest PIP assessment

    Well done @Cemoi! I hope it wasn't too costly healthwise. Welcome to the forums :)
  8. Skycloud

    Films

    I was pleasantly surprised by Wonder Woman! I liked the casting for Ares, the god of war - not who I would have expected to have been picked.
  9. Skycloud

    Book due out: "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery"

    Behind every great old cave man sharing his wisdom is an old cave woman rolling her eyes.. :rolleyes:
  10. Skycloud

    Book due out: "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery"

    I think a doctor, if wrongly dismissive for whatever reason, might be more likely to take a patient seriously if there is a second person of any gender supporting what the patient says. I can cite examples from my family where a woman accompanying the patient has made a vital difference (i.e...
  11. Skycloud

    Insomnia.

    ;)
  12. Skycloud

    Trial By Error: Bristol’s Complaint to Berkeley [Short Tuller blog 23rd December 2017]

    And that no one will listen to the criticism anyway
  13. Skycloud

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    Re: OMF. There's talent and experience in the Stanford team and their collaborators and I'm expecting that useful science will come from them, which may or may not be answers we all want to hear. I understand the desire to work without being slowed down by publishing, which really seems to come...
  14. Skycloud

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    That's what I feel, and also about anyone else who does the same. There people who are feeling or have felt suicidal because they can't see an end to what they are going through. To have researchers and the media coming out with hype that raises false hopes isn't helping. I know it's not always...
  15. Skycloud

    Trial By Error: Bristol’s Complaint to Berkeley [Short Tuller blog 23rd December 2017]

    As she keeps persisting in.. well.. anything at all really, I propose EC conducts life with a bag on her head. The more anonymous she is the better :bag: edit changed 'her research' to 'life'. (can't remember how to cross words out)
  16. Skycloud

    Insomnia.

    :hug: I'm at a loss for suggestions that are better than the evil mastermind plan, but wonder about this That's what I do too! so now I've got pillows and blankets that make my couch comfy to sleep on. That way I might get more sleep on the couch. Sometimes I do. Might help? It's pants, I hope...
  17. Skycloud

    UK House of Lords/ House of Commons Questions

    The profile of ME in parliament has clearly gone up given the frequency of questions we are now seeing.
  18. Skycloud

    Medscape: Top 10 clinical trends of 2017. CFS on 6th place.

    @strategist I hope you are right. Possibly encouraging.
  19. Skycloud

    News Article: Court orders Atos to pay disabled woman £5,000 over dishonest PIP assessment

    Shhhh!! - I'm still trying to be optimistic! They've a track record of doing that so I wouldn't be surprised by it. The Select Committee are certainly aware of the problem of dishonest reporting by assessors, so maybe that will make a difference. I certainly don't expect the government to put...
  20. Skycloud

    News Article: Court orders Atos to pay disabled woman £5,000 over dishonest PIP assessment

    Atos being taken to court and losing repeatedly might force a change from the government, particularly if this was publiciesd. I try to be optimistic.
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