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  1. Skycloud

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    @Lilpink It seems you've become upset or indignant (?) at being called a stalker. That's a shame and unnecessary because I did not accuse you of being a stalker. These are all my relevant posts: Re: EC's grandfather and Oxford I then read your reasoning behind this line of discussion and...
  2. Skycloud

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    I have most energy early in the day, especially if I wake and get up slowly and budget it. On days when I manage that well I may have more energy again in the evening.
  3. Skycloud

    Who is Simon Wessely?

    I really hope that this false narrative about this man is thoroughly changed in his lifetime, while he can 'enjoy' it.
  4. Skycloud

    Vitamin D status in chronic fatigue syndrome/myalgic encephalomyelitis: a cohort study from the North-West of England

    Now that's interesting! When I looked online, and it was maybe 3 or 4 years ago(?) there was nothing available as cheaply as that, and I think it was somewhere in Birmingham that I considered. Same place? Anyway, it indicates to me that there has been a demand for vit D testing such that it's...
  5. Skycloud

    Solve ME/CFS Initiative: Discovery Forum 2017 Highlights: ME/CFS and Gulf War Illness

    That's just fascinating. Somebody give Klimas and her team lots of money for ME!
  6. Skycloud

    Vitamin D status in chronic fatigue syndrome/myalgic encephalomyelitis: a cohort study from the North-West of England

    True. I increased my D3 following my test for that reason. I don't think I would be able to get another test on the NHS.
  7. Skycloud

    Vitamin D status in chronic fatigue syndrome/myalgic encephalomyelitis: a cohort study from the North-West of England

    I asked a GP at my surgery for a vit D test. I had already been supplementing with D3. She understood when I explained why it would be very reasonable in my case to check it but said that 'they' often refused to do the test because of the cost. Together we wrote a detailed account of why I...
  8. Skycloud

    Are PWME at greater risk of cardiovascular disease & diabetes? If so, what can we do about it?

    Should I be taking CoQ10 then? I think I should find out more about it
  9. Skycloud

    Physiological measures in participants with CFS, multiple sclerosis and healthy controls following repeated exercise, 2017, Hodges et al

    @ Wonko Not something that had occured to me, but I wouldn't be surprised!
  10. Skycloud

    ME - The Movie. Ouch Disability Podcast BBCRadio

    I can't actually remember what the BBC article said, or anything much from this podcast. If anyone thinks that this thread should be merged with the BBC article or deleted that's fine with me, go ahead and report it. The way I am today by tomorrow I probably won't remember either item at all...
  11. Skycloud

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I agree, though I understand why people get caught up in that detail. It's not for me as it seems unnecessary and may risk looking a bit stalkerish.
  12. Skycloud

    UK House of Lords/ House of Commons Questions

    Buck passing as usual But - ME as an issue is becoming more noticeable.. I'm grateful to all those who ask the questions.
  13. Skycloud

    ME - The Movie. Ouch Disability Podcast BBCRadio

    An interview with Jen Brea on the Ouch Disability Podcast On BBC iPlayer Radio http://www.bbc.co.uk/programmes/p05mgjjz 19 minutes long eta - Omar Wasow, Jen's husband also speaks.
  14. Skycloud

    BBC: I made a film from my bed to prove my illness is real - Jen brea

    One of the great things about all this good coverage is that I can use it as ammo to put into emails to friends; links they can look up. I want them to be interested in the film, know it's worth watching and watch it. I just sent my first email to a friend who though in remission has children...
  15. Skycloud

    IiME: Blog and research update from Katharine Seton, Nov 2017

    It's great to see people at the beginning of their career choose ME research
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