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This looks like an interesting figure. Anyone know how it compares to the Dubbo study in terms of decrease in numbers ill?

There could be causation though people with ME can get alcohol intolerence so maybe the more severe do tend to avoid alcohol (and limit exercise and have difficulties with employers) those who have more difficulties are perhaps more likely to seek out self help organizations. Its can be the...

It is one of the reasons to stress the need for high quality science and proper evidence rather than individual anecdote. Although I tend to think that proper evidence is needed to demonstrate value and multiple anecdotes can demonstrate possibilities of harm (although not likelihoods). There...

It was a great find. I think that shows the power of the patient community here. Lots of people contribute hugely to finding information, analyzing and diseminating it.

Its interesting as they clearly now realize they were on the wrong side (although really there response was one of inaction, refusing to say that PACE should publish data - as well as rewarding the brave researchers who stood up to the nasty vicious patients). There we asked them is basically...

After the trial @JohnTheJack contacted them and blogged about their attitudes to PACE https://johnthejack.com/2016/10/17/sense-about-science-the-pace-trial-and-me/

I was amazed at this response from sense about science who I think Gave Wessely and award and were defenders of PACE and their attacks on patients

I think even moderate cases can have issues due to nausia and lack of appetite. One thing I wonder is whether these symptoms increase/decrease along with severity (as with other symptoms).

I did wonder if there are some politics going on around who gets appointed since they say clinicians and researchers. I could imagine someone in Cochrane pushing for people with a particular view.

Ever wondered if the QA their stats code used to analyze trials.

Is it valid to say that benefits were sustained when the comparison group catches up. I would have thought a claim that they were sustained would mean that the difference was retained?

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Reading between the lines what I guess he is saying is research into GET and LP shouldn't be shut down (hence the comment on recovery). But I would argue funding such research is a waste of money (and unethical) unless there is a good reason to believe it would work - which there is not (along...

At one point surveying medical professionals would have lead to the conclusion bleeding using leaches was a good idea. It doesn't seem like a good way to draw a conclusion about the validity of a treatment especially as you point out when something is new and there is no experience.

It wasn't it was refering to Garner's comment about "constructive dialogue" and how that isn't possible when people like Sharp are using their media contacts to attack patients. The part about patients calling for high quality research is an important part of the message as well (both damning to...

It seems like a very poor piece and not in the normal newnight style of challenging those making claims. I notice the journalist who did the piece used to work at the BMJ so I suspect a large amout of bias there. They mentioned PACE but not by name and suggested the controversy was around...

I think that there is an additional problem its not just the presentation of symptoms to the medical practitioner it is how that practitioner interprets symptoms in terms of what they have seen before or heard about. So there are two layers here that allow for translation errors between the...

My guess (and I've only skimmed the abstract) is that they are claiming that the earlier reduction in fatigue creates a more quality of life per year and hence with a relatively small additional cost it their intervention becomes cost effective.

The lack of progress should really be worrying Cochrane. They say that this is a pilot to involve patients and then fail to do anything for more than a year. This only seems to say that they are not serious about patient engagement. If the person they chose to do the pilot can't find the time...

It the ethics committee really know about ethics then I think the article would concern them in terms of a doctor using a position of power to dismiss a whole group of patients and they wouldn't be naive about the timing either. But that is probably hoping for too much from an ethics committee.