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  1. Adrian

    Trisha Greenhalgh on ME/CFS and Long Covid

    Apart from what they say!
  2. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Did the BBC choose at all or was this a story pushed to them by a press lobby group such as the SMC?
  3. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I can see though that it would present real issues from a diagnosis perspective as I'm not sure retrospective views on symptoms are accurate (I suspect there is recall bias). But I wonder if something could be done with long covid as there is a larger active population.
  4. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I wonder if this could be an important question. Assuming we have 2 groups with very similar symtoms (or variations within groups as much as variations between groups) then are there two sets of underlying causes but are there also common mechanisms to the symptoms or does something happen to...
  5. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I don't think it does discredit athe entire system of medicine. It points to the importance of following the evidence and that the experts will often crowd around the things they want not where the evidence takes them. Hence really stresses the importance of critical evaluation. Of course those...
  6. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think the BMJ are generally supportive of the views he expressed. They are very anti-ME patients.
  7. Adrian

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I've wondered if there is a role for specialists in diagnosing the non-obvious/difficult or rare diseases (i.e. not GPs but people who deal with those who can't easily be allocated to a specialism). Some simple screening tests may also help allocate to specialisms.
  8. Adrian

    Trisha Greenhalgh on ME/CFS and Long Covid

    I think she is using a blocking tool which is based on followers and doing it in batches of 500.
  9. Adrian

    Trisha Greenhalgh on ME/CFS and Long Covid

    Possibly but I find emojis challenging.
  10. Adrian

    Trisha Greenhalgh on ME/CFS and Long Covid

    Or that is the message she wishes to propogate to make her sound reasonable.
  11. Adrian

    Trisha Greenhalgh on ME/CFS and Long Covid

    My first thought this is that she (as an Oxford Don) thinks patients are the great unwashed and how dare they comment on the science! But I wonder if there is just a certain amount of embarassment in that things she says about ME clearly don't stand up to scrutiny - hence an effort to avoid...
  12. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Another way to look at both Garner's comments and Greenhalgh's is they demonstrate a clear desire to not support evidence based medicine and in that I think in the long term it helps illustrate the issues within the UK medical profession.
  13. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yet isn't he doing something similar in pushing his theory which has no evidential basis? The difference is he is a medical professional.
  14. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Other academics should worry when they see the standard of reasoning that puts anecdote above the need for evidence. As someone who works in a different area I know people who get upset by bad research (some people can become standard jokes like the person who proposed music based cryptography)...
  15. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Doesn't it say alot about the standards of academics who work on 'evidence' in the medical field. Surely they must understand the basics about bias?
  16. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think we should have a push for good scientific standards rather then using anecdote to push treatments. Especially from those with 'science labels'.
  17. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think there is a real problem here in that where there is a chance of recovery (such as with post viral fatigue or early ME if you prefer that label) then it is easy to credit what ever was tried with the recovery. Its quite natural to do. But this is why proper science and trials are needed...
  18. Adrian

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I think this represents how research funding is organized traditionally in the UK. Academics come up with ideas and put them to the various review boards and then they get funded or not. Its not a proactive approach to identifying areas that are important and doing things to encourage research...
  19. Adrian

    The biology of coronavirus COVID-19 - including research and treatments

    You could see it as poor countries having a crap option but it may prove a better option where infrastructure is limited because it can be transported and kept cold more easily. Although I think some countries were struggling with refrigerated vacines in general. A few years ago Gates was...
  20. Adrian

    Investigating reduced tolerance to alcohol in ME?

    Did it matter what you drank (was wine worse than beer or spirits)? I seem to remember someone saying that wine was particularly bad (apart from a really cheap fizzy wine that had probably never been near a grape or yeast).
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